paraplegia

  1. Craig Mattice

    You Want What for a Genetic Marker Test?

    A quick update. My neuro wished that I have them look into my new insurance company about paying for an Athenia genetic marker test to confirm or rule out Hereditary Spastic Paraplegia. After waiting a month, I received a call from his office. The secretary has gotten a big run around and a...
  2. E

    PLS or HSP

    Hi! I'm new here let me give you a little history. I didn't have any one definitive test for PLS/HSP (hereiditary spastic paraplegia). The doctor's just ruled everything else out. Is this normal or is there a test? Also, my sister has something very similar to this. Although, none of the...
  3. Zaphoon

    February-09 = pls awareness month

    The Spastic Paraplegia Foundation has this month listed as PLS Awareness Month on their website. I don't see anything about this to celebrate about but I'm glad there has been a month set aside for awareness. Zaphoon
  4. Craig Mattice

    Oh Great! Here we go again.....

    Why am I not surprised? I was asked by my excellent PCP to see a "real neuro MD" rather than the neuro adult NP i've been seeing since '04. I complied, my NP was not surprised and because my case is so complicated I was assigned a "real neuro MD." My first visit to him was on Thursday this...
  5. Craig Mattice

    Diagnosed HSP, Sister to PLS Disease

    Well, my situation is a tad different than some people in this forum. I am home bound due to total disability from Hereditary Spastic Paraplegia or HSP. It is a serious deteriorating motor neuron disease that has no treatment or cure and only continues to get worse in degeneration of the...
  6. Craig Mattice

    Found this Forum by Referral of Existing Member

    Well, my situation is a tad different than some people in this forum. I am home bound due to total disability from Hereditary Spastic Paraplegia or HSP. It is a serious deteriorating motor neuron disease that has no treatment or cure and only continues to get worse in degeneration of the...
  7. Just J

    HSP (Hereditary Spastic Paraplegia)

    Is there anyone out there awaiting diagnosed who have looked into HSP or doctor mentioned symptoms were like HSP? My husbands symptoms were compared to this but no diagnosed of HSP (not ruled out yet). Would rather be HSP then ALS ~ J.
  8. olly

    info for hoping

    By the mid-1990s there had been more or lessa consensus view that PLS could be recognizedclinically if the other conditions were excluded, that thesyndrome was more slowly progressive than ALS itself,that it was almost never familial or associated withdementia, and that onset was after age 40...
  9. W

    Lateral Sclerosis Awareness Month

    Just received the March/April news letter from "The Hereditary Spastic Paraplegia Foundation" stating that California Congressman Joe Baca has introduced legislation to create increased awareness of PLS. If passed, each February will be the "Hardy Brown PLS Awareness Month". The Hereditary...
  10. M

    hi,new.......

    Hi,my name is Michelle,lol 40 female from ST.Marys GA. i have recently been diagnosed with hereditary spastic paraplegia,but i personally beleive it may be PLS,or at least a co mplicated form of HSP,the reason for this is that most hsp's do not cause arm and speech problems as pls does,i also...
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