paraplegia
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Lots of questions, very scared. Bulbar at 27?
Thank you for your time and consideration, in advance. When my twitches started nearly 7 months ago, they had me panicking. In addition to the twitching, my only other symptoms were buzzing sensations through my feet and legs, however, at times, they went up through my trunk and even neck. I...- xoinnamorata
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- als fear anxiety bfs choking clonus dad early eating emg exercise family history fatigue fear female finger foot friend hours improvement kids life lyme disease mri muscle muscle fatigue muscles neurologist ohio onset paraplegia phlegm problems questions reading shoulder swallowing symptoms test twitches twitching weakness young
- Replies: 22
- Forum: Could this be ALS?
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Wishing sitting waiting
Hi everyone, I'm new to this site so hope I've posted in the right section, My question is does anyone else get frustrated and sick of waiting for a diagnoses? I'm in the process of being diagnosed with a few possiabiltys of motor neuron disease, spinal mucular atrophy, spastic paraplegia...- Emz1985
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- atrophy diagnosed disability family frustrated hope life lift mnd motor neuron disease neurologist paraplegia rant travel
- Replies: 13
- Forum: Could this be ALS?
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HSP vs PLS: Some General Info
Being halfway between an HSP and PLS diagnosis, I've had a lot of time to learn the nuances of the two diseases. Since anyone with a generic UMN diagnosis ends up here, this seemed a good place to put up some info. First, the similarities: HSP (Hereditary Spastic Paraplegia/Paraparesis) and PLS...- Tokahfang
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- advice atrophy baclofen camp clinical confused cure dementia diagnosis digital drugs eye fatigue finger ftd genetic hsp info information medical neurologist nurses pain paraplegia physical therapy pls pressure sores problems progression reflex support symptoms tests therapy umn unknown voice weakness wheelchairs work
- Replies: 17
- Forum: Primary lateral sclerosis
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Can Anyone Help?
I posted this on the PLS forum but somebody kindly suggested I post it here instead: - Hello Everyone I am not sure if this is the right place to post so apologies in advance if it isnt. I am posting on behalf of my husband. By way of background, he is a 29 year old policeman. Up until a...- Danni1000b
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- baclofen christmas diagnosed diagnosis emg frustrated hip hope life muscle neurologist night no diagnosis paraplegia pls problem problems scared spasms stiffness symptoms tests work
- Replies: 2
- Forum: Could this be ALS?
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Help Anyone?
Hello Everyone I am not sure if this is the right place to post so apologies in advance if it isnt. I am posting on behalf of my husband. By way of background, he is a 29 year old policeman. Up until a few years ago he played Rugby twice a week, was an avid gym goer and rode 9 miles each way...- Danni1000b
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- baclofen christmas diagnosed diagnosis emg frustrated hip hope life muscle neurologist night no diagnosis paraplegia problem problems scared spasms stiffness symptoms tests work
- Replies: 18
- Forum: Primary lateral sclerosis
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Familial als?
Hello. I wrote on this forum once but i hope that you won't kill me that I'm back with it again... Soon after I wrote there about my story, I found the results of the ALS risk studies, and now almost everything is against my "calming down" :/ Sorry for my English, I'm Polish... One again... My...- gawel
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- age als als? back familial familial als father hope medical paraplegia risk story
- Replies: 10
- Forum: Could this be ALS?
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A Quiet Greeting
Hello! I have come to this place by a circuitous route, but I hope you won't mind the intrusion. I started a mostly typical course of sporadic (no family history, didn't get genetically tested for cost's sake) HSP in 1994ish. I had hand involvement, but that is part of a few variants. Years of...- Tokahfang
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- advice back bedridden coping cost diagnosed family family history food hope hsp ice increase life manual paraplegia progression sporadic support swallowing voice weakness
- Replies: 9
- Forum: New members
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On the internet all roads lead to ALS...
Hi all, I'm a long time reader of these forums but this is the first time I've felt inclined to post in response to the many, many people who appear to be using the internet as their 'reliable' source of information. I have been recently diagnosed as having Hereditary Spastic Paraplegia, a...- MightyB
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- als brain diagnosed diagnosis headache heart hours hsp hypochondria information lead mnd muscle muscle twitch night paraplegia stress symptoms symptoms of als twitch worried worried about als worries
- Replies: 8
- Forum: Could this be ALS?
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Stem cell clinical trial- has this been posted yet?
Can someone tell me if this is new info? September 21, 2009 Neuralstem Receives FDA Approval To Begin First ALS Stem Cell Trial Neuralstem, Inc. today announced that the U.S. Food and Drug Administration (FDA) has approved its Investigational New Drug (IND) application to commence a Phase I...- pocuita
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- ability brain cell clinical clinical trial cure data death fda food health hope info life medical medicine movement muscle muscles neurology paralysis paraplegia research risk stem cell stem cells surgery technology test treatment trial work
- Replies: 45
- Forum: Research and trials
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How long for diagnosis?
Hi, I've been seeing a neurologist for initially a weak left hand/arm then it progressed to weak foot and leg and now it's been close to two years. At first when I initially showed her my tremor (pressing a finger against a wall) she told me after a clean emg that I had tremors. Next scheduled...- pebbles
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- als? arm back brain clean emg diagnosis emg female finger foot frustrated information mri ms? muscle neurologist paraplegia second opinion tremor twitching venting wrong
- Replies: 12
- Forum: Could this be ALS?
