paraplegia

  1. X

    Lots of questions, very scared. Bulbar at 27?

    Thank you for your time and consideration, in advance. When my twitches started nearly 7 months ago, they had me panicking. In addition to the twitching, my only other symptoms were buzzing sensations through my feet and legs, however, at times, they went up through my trunk and even neck. I...
  2. E

    Wishing sitting waiting

    Hi everyone, I'm new to this site so hope I've posted in the right section, My question is does anyone else get frustrated and sick of waiting for a diagnoses? I'm in the process of being diagnosed with a few possiabiltys of motor neuron disease, spinal mucular atrophy, spastic paraplegia...
  3. Tokahfang

    HSP vs PLS: Some General Info

    Being halfway between an HSP and PLS diagnosis, I've had a lot of time to learn the nuances of the two diseases. Since anyone with a generic UMN diagnosis ends up here, this seemed a good place to put up some info. First, the similarities: HSP (Hereditary Spastic Paraplegia/Paraparesis) and PLS...
  4. D

    Can Anyone Help?

    I posted this on the PLS forum but somebody kindly suggested I post it here instead: - Hello Everyone I am not sure if this is the right place to post so apologies in advance if it isnt. I am posting on behalf of my husband. By way of background, he is a 29 year old policeman. Up until a...
  5. D

    Help Anyone?

    Hello Everyone I am not sure if this is the right place to post so apologies in advance if it isnt. I am posting on behalf of my husband. By way of background, he is a 29 year old policeman. Up until a few years ago he played Rugby twice a week, was an avid gym goer and rode 9 miles each way...
  6. G

    Familial als?

    Hello. I wrote on this forum once but i hope that you won't kill me that I'm back with it again... Soon after I wrote there about my story, I found the results of the ALS risk studies, and now almost everything is against my "calming down" :/ Sorry for my English, I'm Polish... One again... My...
  7. Tokahfang

    A Quiet Greeting

    Hello! I have come to this place by a circuitous route, but I hope you won't mind the intrusion. I started a mostly typical course of sporadic (no family history, didn't get genetically tested for cost's sake) HSP in 1994ish. I had hand involvement, but that is part of a few variants. Years of...
  8. M

    On the internet all roads lead to ALS...

    Hi all, I'm a long time reader of these forums but this is the first time I've felt inclined to post in response to the many, many people who appear to be using the internet as their 'reliable' source of information. I have been recently diagnosed as having Hereditary Spastic Paraplegia, a...
  9. P

    Stem cell clinical trial- has this been posted yet?

    Can someone tell me if this is new info? September 21, 2009 Neuralstem Receives FDA Approval To Begin First ALS Stem Cell Trial Neuralstem, Inc. today announced that the U.S. Food and Drug Administration (FDA) has approved its Investigational New Drug (IND) application to commence a Phase I...
  10. P

    How long for diagnosis?

    Hi, I've been seeing a neurologist for initially a weak left hand/arm then it progressed to weak foot and leg and now it's been close to two years. At first when I initially showed her my tremor (pressing a finger against a wall) she told me after a clean emg that I had tremors. Next scheduled...
Top