paraplegia

  1. S

    Heading to HSP/PLS conference in Seattle

    Hi All, Well, as my title suggests, I am about to head to Seattle for the Spastic Paraplegia Foundation's conference on HSP and PLS. I am excited about meeting other people with these disorders (mine is presumably HSP), but I am also nervous about seeing what "the future" might look like for...
  2. S

    It's all starting to catch up with me

    Hi all, Well, as my title suggests, everything's really starting to catch up with me since being diagnosed with HSP last summer. For those who don't know, hereditary spastic paraplegia is a pure upper motor neuron disorder. HSP is not fatal, generally moves slowly and mostly affects the legs...
  3. S

    Muscle atrophy

    Hi all, I was recently surprised to find that my right leg has atrophied significantly. A pretty big chunk of my gastroc (calf) muscle is suddenly just ... missing. And my whole leg and foot are now much visibly thinner than my other leg. My working diagnosis is HSP, hereditary spastic...
  4. S

    Progression of UMN symptoms

    Hi, This is a question for the folks with UMN disorders. Could you tell me a little bit about the timeline of how your symptoms have progressed? What started where, and when/how things shifted to other parts of your body? I was provisionally diagnosed with HSP (hereditary spastic paraplegia)...
  5. IhavePLS

    Neurologists - and why they are so slow to diagnosis!

    Hello to all, It's the strangest of things, actually...in another thread in the PLS forum, Mike from Maine raised the issue of UMN-Dominant ALS, asking whether PLS and ALS are part of a continuum -- or if they are separate diseases. After all of my postings in that thread (admittedly, I do...
  6. Sammantha

    God has overestimated me!

    Hey.. Ive been off for awhile. I went to university of michigan on hopes through my neuros at chapel hill that i had spastic paraplegia. A fifteen minute appointment, and i was told, i do not have a hereditary disorder and i have hope this is not a degenerative condition.....well shit so do I...
  7. M

    update. normalish emg etc.

    I posted a few threads a while ago as I am in the process of looking for a diagnosis. My neurologist thought from the start that my condition is likely genetic and that is still the case. They thought it likely that I have a rare type of charcot Marie tooth or a rare type of hereditary spastic...
  8. M

    Undiagnosed ....familial als?

    Hi. Ive posted on the PLS forum but have realised i dont seen to fit in there with my symptoms. I have been told that I have a neurological condition after being referred to a neurologist and genetic dept. I have upper motor neuron signs including brisk reflexes and spasticity in my...
  9. N

    Veterans with PLS

    Don't know why our thread got closed down but I wanted to share this info with any veteran who is trying to get service connection through the VA. My husband has had PLS for 30 years and we are appealing the VA's decision not to grant him service connection. His neurologist from the Cleveland...
  10. Sammantha

    update

    Got back from neuro...... He did not want to give a diagnosis without the other neuro i have been seeing too. I told him well then that was that, he then said here i will give you in writing what we have labeled you so far Pseudobulbar Palsy and Spastic Paraplegia. My psychiatrist diagnosed...
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