paralyzed

Every day seems more like "Ground Hogs Day". My son and I have been caring for our PALS since September 2011. The first few years were not bad. He still could talk, walk, and eat. As the disease progressed, he decided on a feeding peg tube and much later, a ventilator. He is paralyzed...

Neurology is a very fine field of diagnosis. My respects to the those in the field. My actual diagnosis is HIV Associated Vacuolar Myelopathy. It runs nearly the same course of ALS, but is a bit faster. It's been over three decades of being HIV positive. I held fast and hard in keeping my...

Hi, I want to start by saying I am aware that this is a very serious illness and am in no way trying to make a mockery out of it, however, I'm here because I'm trying to educate myself on the disease to better assess whether I have it, what my risks are etc. The last couple of months I've...

This may be a long shot but has any with ALS ever experienced a sharp stabbing pain to the rib cage area when taking a deep breath or coughing, laughing, etc. I have felt this pain in my shoulder, my lower back and on both sides of my body. This has been going on for months. It used to only be...

Good afternoon, My father was diagnosed with ALS on October 6, 2017. He passed away on October 26, 2017 at 77 years old. He was in the Navy from 1957 to 1061. I have a call into the Paralyzed Veterans of America in Augusta but thought I would post here as well. Would my mother be eligible...

Hey Everyone, I have been going some issues lately that I would like to get some experienced opinions on. I am a 34 yr old male with two little kids and I have been terrified that something is happening. 2 months ago it started with what I perceived was numbness, but after two months have...

Hi, I'm Brook. I didn't know where else to post this. I'm not really asking if I have ALS. I am introducing myself and venting my fears to a group of compassionate people. I read all the stickies and apologize in advance if I'm too verbose. First off, I have been lurking on this site for...

This is something that has been on my mind since I was diagnosed 6 or 7 months ago. My whole life I have had claustrophobia. It was worse when I was a child because I was unable to reason through frightening situations, but it's still a part of my life as an adult. It doesn't become an...

My mom passed away in June, less than 2 years after diagnosis. I honestly do not think it was the ALS that finally took her but I guess it could have been. She got a feeding tube 1 year earlier even tho she could still swallow, because they recommended getting it early while it wouldn't be...

Hi everyone. I'm a 44 year old female. On Mother's Day weekend I almost choked on a roll at Bob Evans. I sat there not sure whether to cough it up or swallow it down. That next Wednesday the same happened with a donut. About a week later, one night my entire body felt numb & legs felt heavy and...