paralyzed

  1. C

    Is this ALS?

    I really need an opinion. Someone told me this A.M. that I could not have any terminal(what? I thought we were all terminal),progressive disease because: I could not walk on my toes without my left heel dropping constantly in December. I realized my left calf had atrophied, and I had no left...
  2. T

    My ALS friend can help with asstistive technologies.

    To All It May Concern: I have been fortunate in knowing my friend and former boss for 25 years now. Three years ago my friend was diagnosed with ALS (Lou Gehrig’s disease). His name is Larry Savage. He is 57 years of age and he is in the final stages of ALS. I’ve been told only 3 to 4...
    • [email protected]
    • Thread
    • accessibility adjustable als assistive devices back bed brother canada canadians caregivers chair communication cost diagnosed disability family friend life mobility new assistive technology paralyzed quality of life research software stages stress technology video voice wheelchair work
    • Replies: 31
    • Forum: General discussion about ALS/MND
  3. L

    New Assistive Technology For All Is Possible

    Hello Everyone, I have struggled with ALS (Lou Gehrig’s disease) for three years now. At this point I can still move my neck and head but the rest of my body is effectively paralyzed. Over the past three years I’ve found that most of the assistive devices I needed either required...
    • lsavage2000
    • Thread
    • adjustable als assistive devices back bed brother caregivers cramps disability documents electric wheelchair ideas life lift love music new assistive technology night pain paralyzed quality of life software speech stress technology video voice wheelchair work
    • Replies: 1
    • Forum: General discussion about ALS/MND
  4. C

    if it is not the ALS, what else?

    hi im a new member my dad may have the ALS and we are all anxious about that. well, 2 years ago (even more), my dad had some trouble pronouncing some letters...later on he stopped speaking..in fact he cannot move his tongue...now, he doesn't speak at all and he has difficulties swallowing...He...
    • cwms
    • Thread
    • advice als dad eating fingers paralyzed swallowing symptoms tongue
    • Replies: 11
    • Forum: Could this be ALS?
  5. L

    Help to improve quality of life

    Hello Everyone, I have struggled with ALS (Lou Gehrig’s disease) for three years now. At this point I can still move my neck and head but the rest of my body is effectively paralyzed. Over the past three years I’ve found that most of the assistive devices I needed either required...
    • lsavage2000
    • Thread
    • adjustable als assistive devices back bed brother caregivers cramps disability documents electric wheelchair ideas life lift love music night pain paralyzed quality of life software speech stress video voice wheelchair work
    • Replies: 16
    • Forum: Tips, tricks, and gadgets
  6. T

    follow up and thank you

    Hello everyone. I just wanted to let you know how things were going. As you most are aware back in March I went off the deep end. The twitch in the right front of my tongue that had started in July of 2007had moved to the top of my tongue and was quite painful. All of my fears of ALS came...
    • tmarino
    • Thread
    • als anxiety back brain death muscle paralyzed questions symptoms tongue twitch twitching wanted work
    • Replies: 1
    • Forum: Could this be ALS?
  7. L

    Veterans with ALS

    Hi, My dad just passed away from ALS, and when I asked his nurse what I could do to thank her for her help she said I could try to make more people aware of the benefits for veterans with ALS. So, I am posting in the hopes that this may get to another vet like my dad who did not know of the...
  8. L

    intro / need advice (from PALS esp.)

    This is my first time here and I hope you can help! Intro: I’m a part time caregiver for my dad who was diagnosed January 2008. He is 66 years old and completely paralyzed now but can still move his head from side to side. He can make sounds but I cannot understand him anymore, and our...
    • Laura in CA
    • Thread
    • advice bed breathing caregiver communication conversation dad diagnosed family feeding feeding tube health help! hope info kids life pals paralyzed reading scared shaking shower tobii toileting vacation wanted work worried
    • Replies: 7
    • Forum: Current caregivers
  9. C

    How much longer

    Hi, my mom has had ALS for 2 years now and she is has refused a feeding tube. She has had a very rapid progession of the disease. She is completely paralyzed except for little head movement. She is just barely getting ensure down 3 times a day but it takes about 1/2 hour to get one bottle...
  10. R

    The Final Four, Butler, ALS

    From ALSA Florida Chapter (if you know anyone in the media, please fwd the story!):
    • rknt50a
    • Thread
    • ability advocacy advocate als als awareness alsa awareness ball brain cell cure diagnosis ice indianapolis information life media muscles paralyzed speech story
    • Replies: 7
    • Forum: Off topic everything
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