paralysis

  1. S

    Is this BFS or ALS?

    I'm sure a lot of people post here about muscle twitching and I apologize for being one of those people, I have been scouring the internet for answers and I'm deciding to post to see if there's anyone out there who may have some good insight. Thank you in advance. My mother passed from ALS...
  2. S

    I cant stand or walk on my heels

    Hi dear friends Thank you for your patience and the time you take to answer our questions. I am silent singer...one month ago i wrote here with the "right arm weakness" topic but right now my thread is closed. Since 40 days ago i have had right hand weakness in mornings and during sleeping.but...
  3. M

    12 months struggling, still no diagnosis

    Hi, my husband has some neurological problem, as yet undiagnosed. His legs feel heavy and stiff to move, particularly walking up stairs or slopes, he says it is like wading through chest deep mud. There is no pain as such just an almost physical resistance. Like he is wearing a lead suit. He...
  4. Ed340hp

    Tirasemtiv Update - Final

    I finished the Tirasemtiv Clinical Trial. Two weeks open label, to test reactions. 48 weeks double-blind trial. An extra two weeks due to scheduling. My breathing numbers have not dropped for the past 24 weeks, and my leg and arm strength improved over the past 18 weeks (slightly). My small...
  5. D

    Masitinib phase 2-3 positive final results

    AB Science announces positive top-line results of final analysis from study AB10015 of masitinib in amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease Primary analysis is a success and confirms interim analysis Company to host webcast on masitinib in ALS AB Science SA...
  6. A

    Family Members in Denial

    All -- My mother is in her late 70's, has no ability to move her legs and has limited use of her arms, which means she has limited strength in her hands and forearms and that's it. Her breathing is okay but below 50 percent. She is only beginning to have trouble swallowing. She lives with...
  7. S

    Are these bulbar symptoms

    Hello, I have a question about bulbar onset ? For the past 10 days, off and on through the day (usually when active or excited) the back of my throat feels clenched the more I talk, and I get a lot of post nasal drip the more I talk too. I thought hypernasality, but I tried the mirror challenge...
  8. S

    My brother has new symptoms - legs stop working for days at a time

    Hello all, For the last 4 months my brother has been having 6 weekly IVIG treatments to rule out possible MMN, and seemed to be responding - his bicep which had atrophied is growing and he's regained use of a finger that had stopped working. However in the last few weeks he's developed a new...
  9. P

    A question about reflexes?

    Hello. Firstly, thank you for taking the time to read this and reply, I am very grateful! I have read the sticky before posting this. I hold my hands up now and admit I suffer from health anxiety post hospital stay in December. After an MRI it was found I have a blood vessle pressing on a nerve...
  10. J

    Resources for genetic testing

    Hello all, My name is Josh. And there's familial a lesson my family. My mom is diagnosed with it. My grandmother died from it. My great grandfather died from it. And my great great grandfather died from it though on his birth certificate it says creeping paralysis. My mom also has a cousin that...
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