palliative care

  1. C

    Symposium in Berlin.

    Many of you might have read this but for those who haven't ....... ALS TDI Presents Latest Data at International Symposium in Berlin 12/17/2009 This December 8-10, nearly 900 researchers, neurologists, clinicians and others involved in the care of people living with ALS gathered in Berlin...
    • Cherry
    • Thread
    • advice candida ceftriaxone clinical conference data drugs early genetic immune mnd mnd/als movement neurology onset palliative care progression questions robert sporadic support therapy treatment
    • Replies: 0
    • Forum: General discussion about ALS/MND
  2. K

    Interesting Approach

    Below is something many of you may have already found while researching ALS. I was struck by the sheer logical approach this man had to dealing with the disease. I only wish my mother would have taken this approach, instead of fighting everything tooth and nail. This is an excerpt from a blog...
    • kylisa
    • Thread
    • age als baclofen bipap blog breathing bulbar catheter communication communication device cough assist cry decline early feeding feeding tube fell genetic hospice mucus muscles natural night palliative care recipe saliva software speech stress suction transfers voice walker wheelchair
    • Replies: 2
    • Forum: General discussion about ALS/MND
  3. W

    A Caring Friend

    Good day, This is my first post. I am fortunate in many things - two of which are: I do not suffer with a serious illness (I know that my weakness for chocolate chip cookies doesn't count) & an incorrigible sense of humour, and secondly, the privilege of having worked as a HOSPICE trained...
    • Wayne in Nova Scotia
    • Thread
    • age als canada caregivers communication diagnosed diagnosis family friend helpful hospice life love manual medical palliative care questions volunteers weakness
    • Replies: 3
    • Forum: People with ALS (PALS)
  4. MtPockets

    Things to know about HOSPICE before you need it

    When I was put on Hospice a few months ago I was not told that if I had any other medical emergency not related directly to ALS that Medicare would not pay for it. I took myself off Hospice February 29, 2008, because I was told a visit to the ALS clinic would not be paid for while on Hospice...
    • MtPockets
    • Thread
    • als als clinics clinic clinics drugs equipment family health home health care hope hospice info life medical medicare money pain palliative care support treatment work
    • Replies: 14
    • Forum: General discussion about ALS/MND
  5. B

    Breathing and Morphine Pump

    Good morning all. I have a question about breathing, and hope someone could answer it for me. My hubby has been hospitalized for two months now - palliative care unit. Yesterday he was put on a morphine pump for his breathing - he says it helps. How can that be? Doesn't morphine slow down...
    • beaner1
    • Thread
    • age bipap breathing drugs eating heart hope hours morphine movement nurses oxygen pain palliative care pneumonia scared treatment
    • Replies: 3
    • Forum: General discussion about ALS/MND
  6. B

    Hubby's had a BIG set back

    Hello to all. I have some questions that I hope someone can help with. Last Friday, my husband had a heart attack (DX 2 1/2 yrs ago) - he's 47, and has never had heart problems before. It started with him not being able to breathe well - by the time I got home from work, his eyes looked like...
    • beaner1
    • Thread
    • ache back bipap breathing dying eyes feeding heart hope kids meds nurses oxygen pain palliative care pneumonia problems questions running scared shoulder tests venting voice work
    • Replies: 20
    • Forum: General discussion about ALS/MND
  7. C

    my mom has ALS with dimentia

    last year at this time our family was sailing along and everything was fine - i noticed mom's speech was a bit slurred when i was visiting my family - by december she could barely talk and was having trouble walking - now it is august, a year later and she is unable to talk, move on her own, and...
    • cathym
    • Thread
    • als dad dimentia family health hospice nursing home palliative care power speech stress swallowing trouble swallowing worries
    • Replies: 2
    • Forum: General discussion about ALS/MND
  8. P

    Feeding tube and wish to die

    I am wondering, if one does not want a feeding tube, can he/she request to be transferred to hospice for palliative care when eating becomes very difficult ? This seems like a pieceful way out, as opposed to choking to death.
    • ptich
    • Thread
    • choking death eating feeding feeding tube hospice palliative care
    • Replies: 1
    • Forum: PEG feeding tube help
  9. rcharlton

    Cruel Joke

    My wife is in 2nd year Med School. Her class is currently doing sessions on palliative care and terminal illnesses. The general stuff alone would cause most people in our situation to break down - but the other day her class was split up into groups of 20. Students from each group were then...
  10. G

    News about Granny....

    Just a note to all the friends that "Granny" has made on here to let you know that heaven has a new angel today. Granny passed away peacefully in her sleep early yesterday after a brief stay in palliative care. My dad was sleeping beside her. Our family is together this weekend to celebrate...
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