palliative care

  1. Jellycat

    Nearly done with clinics

    So, today we went to our first specialist als clinic. Arrived for 4pm appointment and finished up at 8.30pm. Very impressive clinic with a prof who really knows her stuff. How I wish we'd met her earlier! Got more info today than almost all our other neuro appointments all put together. So why...
    • Jellycat
    • Thread
    • als clinic clinics dementia early heart hospice info palliative care speech swallow
    • Replies: 20
    • Forum: Current caregivers
  2. M

    Goodbyes

    I have made very few comments on this forum over the past 18 months. However I have spent many hours reading your stories. My brother Johnny is now in palliative care and is in his last days with us. He put up a hell of a fight - but now we must let him go. It is hard not to feel lost and...
    • Madonna
    • Thread
    • brother family goodbye hope hours last days palliative care reading wanted
    • Replies: 24
    • Forum: In memory of
  3. indigosd

    Jay Kinney

    WOOSTER -- Jay Richard Kinney, 55, of Wooster, passed away Sunday, Dec. 19, 2010, at his home. He was born Nov. 2, 1955, in Ashland, the son of Robert and Delphine Moffett Kinney, and married his soul mate, Lenora "Lori" Wing on May 11, 993. She survives. He was a loving and dedicated teacher...
    • indigosd
    • Thread
    • alsga back brother children father hospice jay ratman ohio palliative care robert walker
    • Replies: 20
    • Forum: In memory of
  4. irismarie

    Help coming

    But when they tell you palliative care is going to start coming in and the nurse refers to it as the association that helps people at the end of their lives, it feels really really not very nice at all.
  5. rick/Wpg

    My sweetheart Rick Fewster passed away.

    I lost the love of my life, my precious darling husband passed away on Friday August 13, 2010. 12:32 in the aft. He was diagnosed with ALS on Feb 1, 2008 just two weeks after his 55th. He lived 2 1/2years. His desire was to keep his voice till the end and die peacefully at home. He got both...
    • rick/Wpg
    • Thread
    • als bipap breathing diagnosed equipment family friend heart hours life love meds palliative care peg power power wheelchair voice wheelchair work
    • Replies: 20
    • Forum: In memory of
  6. Karin Bolette

    ALS & other Terminal Diseases

    My intention is not to be preachy- I just want to share some of my experiences with you. Some of you know me- I'm Karin (Bolette) and have had Bulbar ALS for a little over 2 years. I have tied up most of my loose ends and am now trying to live each day doing what I love, which are many things...
  7. bythesea

    Helping Patients Face Death, She Fought to Live

    "Patients Face Death, She Fought to Live" Interesting NY Times article about a practitioner in palliative care who fought her own cancer for many years. Sometimes I wonder who is worse off (people with ALS) whose very definition leaves no treatment alternative or people with cancer or say MS...
  8. F

    Hospice and travel

    Hi, I am new to this forum. My dad was "tentatively" diagnosed with ALS a year ago...I say tentatively since it seemed that none of the physicians he saw wanted to say so for sure and kept having us get other opinions. Finally, in October, he was "officially" diagnosed with ALS. He is 74 years...
    • ForNards
    • Thread
    • als bipap breathing brother dad diagnosed frustrated headaches hospice kids nausea oxygen palliative care peg questions travel wanted
    • Replies: 1
    • Forum: General discussion about ALS/MND
  9. DgtofTNfan

    Caring Connections Website

    Found this website when working with someone with questions regarding Advanced Directives. I was not sure if you guys were aware so I thought I would post. Caring Info - Planning Ahead Caring Connections has quite a bit of information for Advanced Directives including printable documents by...
  10. JOSIEM02

    In home care

    My question is how do you know when it is time to have someone come in during the day with your PAL? My husband works abut 2 and a half hours away from home, I work 1 hour away from home, my sister in law works about 15 minutes from our house. Lately I don't feel comfortable leaving and having...
    • JOSIEM02
    • Thread
    • bulbar bulbar onset feeding home care hours onset palliative care peg
    • Replies: 5
    • Forum: Current caregivers
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