pacer

I wanted to write in the forum, as I really appreciated all the information that was passed through the forum, it really helped my dad through his journey with ALS. Unfortunately, I didn’t share much in the forum during his journey as it was such a busy time for me and my family; I had good...

I've been living with ALS about a year, but got diagnosed in August 2012. So far, I only lost most of my speech and weak turning things. The only person that helps is my friend. I am worried that she does realize what's coming. My Dad had ALS so I know what's coming. Is there aware to get help...

OSU (ohio state university) is looking to start their diaphragm pacers. if all goes well i will be one of the first but they need another pals to enroll. contact OSU neuro clinic. dr kolbs staff if you are interested

I'm scheduled to go to cleveland Monday to undergo testing for diaphragm pacer. If I qualify surgery for pacer and peg tube is Weds. VA is paying since ALS is considered service connected. I hope I'm doing the right thing. I hate the burden I'm putting on my wife and family. Don't have use of...

Muscular Dystrophy Association And The ALS Association Fund Clinical Trial Of Diaphragm Pacing System In People With ALS - MarketWatch

A very big call our for our Linda, who has just had her Diaphragm Pacer put in earlier this week. I am sure she can do with a heap of well wishes. Its what this forum does best. Still praying for you Linda

glupavomomiche, I was wondering if you could provide a status on Weatherford's experiences with the pacer? Also, your 'screen name' is extraordinarily unusual: . . . “Glupavo” (neutral gender) means “silly” and “momiche” (feminine) . . . really? Are you concerned whether you have ALS...

HI EVERYONE. MY BROTHER WAS DX IN OCT. 2012 WITH BULBAR ONSET ALS. HIS BREATHING HAS GONE DOWN,I WAS WONDERING IF ANYONE HAD THE DIAPHRAGM PACER INSERTED.HOW ARE YOU DOING WITH IT/was your breathing low at the time of surgery? what is the whole process of testing like?DO YOU THINK IT IS WORTH...

early discussion on the diaphragmatic pacer: Electrical device allows paralyzed man to breathe - BrainTalk Communities - Neurology Support Groups and why it should work: Acetylcholine neurons - the ones that contact the mucle - BrainTalk Communities - Neurology Support Groups

I had the Diaphragm Pacing System (DPS) implanted on Wednesday April 11 and I thought I would share my experiences here for those who are interested. While researching for my own decision I soaked up everything I could find here and elsewhere on Al Gore's invention but I still wished there was...