ohio

Good Afternoon Everyone, My Mother was diagnosed with CIDP in August 07 after months of doctor visits and hospitalizations. She was suppose to have IVG Treatments once a month to start but because she did not have health insurance, and was turned down for medicade, she started receiving the...

Just wondered if the new medication helps ALS patients in any way? I recently read about it through the Cleveland Clinic in Cleveland, Ohio.

Hi, i am starting to have trouble typing...my fingers just aren't going where i need them to go...i don't notice any atrophy or cramping...just a funny, can't quite go where i want them to go...another funny feeling is that my tongue feels too big for my mouth...i am not tongue twitching and can...

Hi all, It's been a couple of months since I have written. My sister was having a hard time breathing in Sept and she has made it through the holidays. By pure will on her part. Her daughter is taking care of her now and we have night aids and aids during the day. The hospice nurse called...

My sister, a 45 yrs old, was just diagnosed with Bulbar Palsay ALS two weeks ago after having symptoms of slurred speech, difficulty swallowing, and weakness in her thumb and arm. In less than two weeks she can barely swallow and is eating only liquids - Boost - and mushy baby food type foods...

My name is Louie Stanley and I would like to sell the van my husband used - hopefully, to a person with ALS. My husband, Jeff, (aka Grumpy Old Coach) and I got a van from a person whose wife fought ALS as well. Originally from Arizona, this 1993 Ford high top, wheelchair accessible (from the...

My father in law was diagnosed with ALS in May of this year. He has had back pain for 2 years now and went through probably every test you could think of and nothing helped. Fianlly the doctor said it may be ALS. He went for a 2nd opinion and they verified it and then a 3rd opinion (because my...

Hello, I just joined your site looking for some support.My mom was diagnosed with ALS April 06.She immediately moved from Ohio to Ill in with my husband and I along with my two children9,10.My daughter is 10 and has cerebral palsy so medical equipment is very familiar in our household.Although...

This is my first post. I have been reading the forum for awhile and it has been just what I was needing. Sometimes when I wake in the night, I go to the computer and read for an hour or so, until I feel sleepy again. Last night I sobbed after reading Sara and Autumn’s threads. Here’s my...

Hi, my name is PamB and I have a sister is who has ALS. I was her only care giver for the past 100 days and now she is visiting her two daughters in California. I have been visiting the site for a couple of months and now I have just gotten the time to write to all of you. You have given me...