ohio

  1. F

    Initial Commitment of $21.7 Million from Ice Bucket Challenge

    The ALS Association Announces Initial Commitment of $21.7 Million from Ice Bucket Challenge Donations to Expedite Search for Treatments and a Cure for ALS Additional $12.5 Million in Matching Gifts Secured Bring Total Commitment to $34.2 million Washington, D.C. (October 2, 2014)—After the...
  2. Grumpy'sWife

    7/29/14 ~ Life Altering Day

    That was the day my world was rocked by news that husband had ALS. Ours is a complicated story so I will try to make it short. For the last 4 years we have traveled the country for our job, working together, playing tourist on the weekend and coming home 10 days at Christmas and if we happened...
  3. marypat

    wheelchair van

    1997 Dodge caravan with lowered floor and manual side enter ramp. Wheelchair can be front passenger or center secured. bench seat in back and removable passenger seat. Runs well but does need some work. 4 New tires. Mileage 164,382. I wish we could donate this but we can't. we are asking...
  4. T

    Does anyone have experience with Walter Reed?

    So I am in a bit of a predicament. I am an Army officer (Captain) with 16 years of service currently serving as a recruiting company commander in Ohio. I am closer to an Air Force Base than an Army base, so I see a Neuro at wright Patterson Air Force base in Dayton where the chief of neurology...
  5. A

    signed out of hospice

    Mom was diagnosed a little over a year ago, can barely walk with my help. Her feet are curling in, legs are very stiff. I literally have to bend her legs for her. Sometimes I feel like I am hurting her because I bend with all my might but she claims it doesn't hurt. We have to turn/shift her...
  6. G

    ALS Diagnosis Confirmed Today

    Hello all, I had my clinic visit today at Ohio State Wexner Medical Center. I've had 6 MRIs, 2 EMGs and lots of blood work with two different neurologists.... all fairly normal. So today my diagnosis was confirmed. Its ALS. My husband and I were prepared for the news. We had the same diagnosis...
  7. M

    Sorry to meet you!

    I never really had a dad, I mean he was there physically but thats about it! About three years ago my mom met a man, a man who is now a very important person in mine and my kids' lives. He is the kindest most caring man that I have ever had in my life! I love him as if he were my dad...
  8. G

    Newly "almost" diagnosed

    Hello all, I've been reading the posts on this forum for over a month now and decided to join in. I was diagnosed by a neurologist on July 17 but went for a second opinion with a really good doctor at Ohio State Medical Center - Dr. Kissel - and he said it's possible but is doing more tests...
  9. L

    is it really possible to have a loved one stay at home?

    Hi everyone. I have been lurking here for the last few months and have gotten so much information from reading everyone's posts. My father was diagnoses with limb-onset ALS in March. He has fasiculations in his legs but is still able to walk completely independently. He has limited use of of...
  10. A

    Showering

    Hello all. I live in Cincinnati, Ohio. My mother stays in our finished basement right now and my dad has to walk her up the stairs to shower. We are looking to expand our bathroom so I am able to give my mom a shower whenever possible. ( My dad showers her every other day but I want like to help...
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