ohio

  1. S

    Dx needs confirmed

    My mother in law has been to Cleveland clinic in Ohio and in Florida to see neurologists. She has also seen a neurologist locally, Lima, Ohio. No one will give her a ALS Diagnosis. They say she may have bulbar palsy. Her problem is with her tongue and she can't talk and is starting to have...
  2. F

    ALS Clinic Appointment Lead Time

    I have a neuro appointment (first one) in a couple weeks. I seem to be deteriorating daily. I have called the neuro's office to see if they can move up my appointment, but they're booked. They did, however, put me on the cancellation list if someone backs out of an appointment. My question...
  3. D

    pulmonary

    dear pals and cals, tomorrow at two i am off to the lung dr. :shock: 3 months ago my vital lung capacity was 32 percent. i would really appreciate your thoughts and prayers. i use the bipap at night only and my last visit all my blood gas levels were normal. any thoughts or ideas. dar in...
  4. D

    my husband the caregiver

    my husband is my main caregiver, while he works several friends come in and clean, cook, and tube feeds me and does our laundry. however, he still comes home at lunch to make sure i use the facilities. in the past four months my als has progressed so that i am more disabled. as this disease...
  5. C

    Going to China

    Has anyone considerred going to China for Oec transplantation. I am scheduled to go. Nothing will ever happen here to help the condition of ALS, at least in the time some of us might have available. Here's some info. BEIJING -- A Chinese neurosurgeon has been besieged by desperate Americans...
  6. D

    NEW TO SITE..CAREGIVER AND FRIEND

    HELLO EVERYONE, NOTICE THAT THERE ARE A LOT OF PEOPLE VIEWING POSTS BUT NOT POSTING. I AM HAVING A LOT O PROBLEMS POSTING? I HOPE SOMEONE CAN HELP ME WITH THIS PROBLEM? WHEN I SUBMIT MY POST I GET A SCREEN THAT SAYS INVAILD SESSION....? I AM 46 AND MY TC IS 48. HE WAS DX ABOUT 2 YRS AGO...
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