nutrition

  1. S

    I hate sounding morbid...

    But I'm a friend/caregiver of a 65 y/o lady that has been diagnosed with limb onset of ALS since August 07. Her condition has decreased rapidly, in Sept '07 she was still walking, and using her limbs. In March, she was hospitalized, and has lost most of the use of all of her limbs, her...
  2. G

    I am inspired

    Hello:-D, I am a new member, I joined 2 weeks ago but started my first posts today. It's been wonderful reading through your posts and gaining a better understanding of what ALS means to people and how it has affected their life or their loved ones' lives. Thank you for sharing your words of...
  3. C

    PEG and high fiber nutrition

    Hello all, My mom received her PEG yesterday. They are waiting on the home health nurse today to give them instructions on how to use it and take care of it. My question---what are the "side effects" of using a high fiber liquid nutrition (1.5 cal Jevity)? She had a bout with severe...
  4. AngelManFL

    High levels of Vitamin B6?

    Hello to all, I thought I would start a new post - I felt guilty that the first one is so long, but very very grateful for all of the outreach of caring, prayers and that comforting feeling of the fact you all "know" me and the challanges that we all face together. My last visit at the local...
  5. M

    "It ain't over til its over"

    I found this today and thought it was interesting/inspiring reading. I hope no-one is offended... TEN WAYS TO BEAT THE REAPER "It ain't over till its over." (Yogi Berra) All terminal patients need to be reminded that while there is life, there is more than hope alone. Namely: 1. A...
  6. H

    Lunch idea

    My mother (the one with PBP) has recently stopped being able to eat bread. She is determined not to have a feeding tube. We were walking through Wally World the other day when we came upon a man handing out samples. They were for a new product called Lunchables Jr., and they're being marketed...
  7. M

    Al and anyone else...your take?

    Hello everyone, this is my first post in these forums, but I have lurked in the shadows for several months reading many of your posts. I'm ready to post now, and it's gonna be long! I am a 34-year old male who began experiencing muscle pain in both shoulders and both hips/thighs about 5 years...
  8. B

    Feeding Tube

    I am very worried about my mother-in-law. She has been having difficulty swallowing for some time. Although she has been given the list of foods to avoid. She continues to eat them, and stuggles during most meals. Is having trouble with constipation because she has difficulty with liquids...
  9. N

    nutrition

    Hello, My mother-in-law has ALS, 2 yrs. diagnosed now and is now having trouble swallowing food, liquids, med's and phelm problems. My question is, what advice can you give us to help her nutritionally, she is not at feeding tube stage yet, but we need suggestions about how to help feed her...
  10. T

    Another Newcomer

    I sent in a reply, but just realized how to start a new thread! So I'm just introducing myself and thanking everyone for the responses and insight you provide! Here's my story: My husband was diagnosed with ALS in 2005 after many months of chiropractic and orthopedic care for pinched nerve...
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