But I'm a friend/caregiver of a 65 y/o lady that has been diagnosed with limb onset of ALS since August 07. Her condition has decreased rapidly, in Sept '07 she was still walking, and using her limbs. In March, she was hospitalized, and has lost most of the use of all of her limbs, her...
Hello:-D,
I am a new member, I joined 2 weeks ago but started my first posts today.
It's been wonderful reading through your posts and gaining a better understanding of what ALS means to people and how it has affected their life or their loved ones' lives.
Thank you for sharing your words of...
Hello all,
My mom received her PEG yesterday. They are waiting on the home health nurse today to give them instructions on how to use it and take care of it.
My question---what are the "side effects" of using a high fiber liquid nutrition (1.5 cal Jevity)?
She had a bout with severe...
Hello to all, I thought I would start a new post - I felt guilty that the first one is so long, but very very grateful for all of the outreach of caring, prayers and that comforting feeling of the fact you all "know" me and the challanges that we all face together.
My last visit at the local...
I found this today and thought it was interesting/inspiring reading. I hope no-one is offended...
TEN WAYS TO BEAT THE REAPER
"It ain't over till its over." (Yogi Berra)
All terminal patients need to be reminded that while there is life, there is more than hope alone. Namely:
1. A...
ability
als
breathing
clinical
cure
death
decline
desperation
diet
dying
free
friend
healing
health
heart
hope
improvement
life
medical
medicine
night
nose
nutrition
quality of life
reading
risk
stress
technology
vitamins
work
worry
wrong
My mother (the one with PBP) has recently stopped being able to eat bread. She is determined not to have a feeding tube. We were walking through Wally World the other day when we came upon a man handing out samples. They were for a new product called Lunchables Jr., and they're being marketed...
Hello everyone, this is my first post in these forums, but I have lurked in the shadows for several months reading many of your posts. I'm ready to post now, and it's gonna be long!
I am a 34-year old male who began experiencing muscle pain in both shoulders and both hips/thighs about 5 years...
I am very worried about my mother-in-law. She has been having difficulty swallowing for some time. Although she has been given the list of foods to avoid. She continues to eat them, and stuggles during most meals. Is having trouble with constipation because she has difficulty with liquids...
Hello,
My mother-in-law has ALS, 2 yrs. diagnosed now and is now having trouble swallowing food, liquids, med's and phelm problems.
My question is, what advice can you give us to help her nutritionally, she is not at feeding tube stage yet, but we need suggestions about how to help feed her...
I sent in a reply, but just realized how to start a new thread!
So I'm just introducing myself and thanking everyone for the responses and insight you provide!
Here's my story:
My husband was diagnosed with ALS in 2005 after many months of chiropractic and orthopedic care for pinched nerve...
als
ball
blender
breathing
caregiver
chair
choking
dad
diagnosed
feeding
feeding tube
kids
love
meds
movement
nutrition
power
power chair
sleep
story
work
worry