nutrition

I'm doing research for my mom. Her Dad wanted her to consider trying Low Dose Naltrexone. I've done a couple searches on the forum, doesn't look like a miracle cure from what I've read, but some people were trying it out. All the posts are about a year old now. Anyone try it? Any updates? My...

What I did today...... I was told yesterday by a doctor that I absolutely could (I heard "should") not eat salad anymore. This is not so much choking related, for me the choking on liquids can still be controlled by leaning forward most of the time. This was because of my latest gift from ALS...

Hi everyone. Let me first say that I have seen the pain and frustration caregivers go through everyday and I admire the strength all of you have to make it through the daily stuggle that is inevitable with ALS. I am a social worker by education, but was working temporarily, or so I thought...

Does anyone know if it is normal for someone bedridden and only getting nutrition through a peg to go to the bathroom over 10 times a day? My mother is now only getting up with our help to be sat on the bedside potty. She has signaled 13 times today. She doesn't think she has a uninary tract...

i am worried about my friend delb,a fellow pal. he is in the final stages of bulbar onset als. he has tried to carry on eating himself as long as possible and does not want a feeding tube,but now hes barely getting any food at all and from what i can tell he is very frail. this past week or so...

The ALS Accociation has a DVD named "Living With ALS". We were given a copy the first time we went to the ALS Clinic last July but in the hustle and bustle of things forgot about it. Last Sunday afternoon Mitzi found it and she and I watched it. It is the best explanation of all the symptoms...

I am new to this forum. I stumbled across it while doing some research for a dear friend who was diagnosed roughly two years ago with ALS. Her ALS started in her legs and then to her arms and now has taken her whole body. She had her last doctors appointment about 4.5 months ago and at that...

My husband, who has ALS, has recently been having trouble with thickened mucus in his mouth and nose. It usually starts in the afternoon or evening and he spends many hours having to spit and blow his nose. At this point, he gets his nutrition from a feeding tube, but was eating a little until...

My mom is now in a Hospice after bravely and courageously and un-complaining-ly battling ALS for a few years now. She is in there due to falls, lack of nutrition and poor swallowing. She can hardly swallow at all. She is not too interested in eating. All her liquids are thickened, and...

The case for “brain-glutamate transporters” and buying more time for today’s PALS. We already know that there is a large school of thought that supports that glutamate plays a role in ALS and therefore Relutek is in it self the greatest proof to that. The use of Relutek in ALS is also in...