My husband Alan lost his battle with ALS on August 18, 2008. He was diagnosed 5 years ago. He never lost his spirit and smiled everyday. I thought that I was prepared for his death. However, no matter how long a loved one is ill, you are never prepared for the day that you have to walk into the...
Hi All
My Mum has recently been diagnosed with ALS and bulbar aged 78. She is currently in rehab care and will shortly be moving to a nursing home. She has been given a prognosis of 5-6 months but her MND nurse says she should never have been given such a deadline ( if you will pardon the pun ...
Hi
My mom was diagnosed 1/08. Bulbar symptoms started 6/07. We have been doing what we can to cope. My dad passed away 5 years ago. My mom still lives alone - a position that is threatened more and more every day. We are currently searching for someone to live-in with her as she does not...
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Dad has been living in a nursing home since early July. Lately his right hand and fingers have become very swollen and is nearly closed as in a fist. The physical therapist is supposed to place some type of brace tomorrow. He says there is no pain but if you pry the fingers open it hurts...
Thanks for all the support already, you guys are great. My dad is so far doing ok breathing but problems with that is what I dread the most. Also, what agencies are there to help? He's in assisted living, but soon he'll have to be in a nursing home. My mom was in one for a year and a half...
My mom is now in a Hospice after bravely and courageously and un-complaining-ly battling ALS for a few years now.
She is in there due to falls, lack of nutrition and poor swallowing. She can hardly swallow at all. She is not too interested in eating. All her liquids are thickened, and...
I am trying to get my mother into either a Hospice or nursing home. You don't know how many times I have heard, "Well, if your mother were to get better and be able to walk on her own............" "If your mother takes a turn for the better................."
I am not trying to dash the...
To All:
Please find below an email I sent to Coleen Maguire yesterday. The reply she sent me is very informative. For all you Okies, please let this senator know not to keep blocking the ALS National Register.
If any of you are interested in the links she refers to, email me off line at...
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va benefits
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website
I'm new to this forum and I was wondering if anyone else has had to resort to putting their PAL in a nursing home? My husband, Alan, was diagnosed in June of 03. The disease has progressed to the point where he can no longer do anything except blink his eyes and nod his head. He used to weigh...
Hello,
My husband, Mike is currently in ICU and has been since May 19th. He had to be placed on a ventilator and the doctor wanted to cut it off or send him to a nursing home. I said no and have finally got the hospital to agree to bringing him home on a vent. Now, they tell me that I need to...