nurses

I am feeling so burnt out and over ALS. I am so over it. I feel like I have ZERO guidance. None. The nurses cannot tell me anything helpful about my mom's care. The ALSA association does not respond. All I want to figure out is WTF I'm suppose to do about hospice and ordering equipment for my...

I have no where to express how I am feeling, this place is the only place I could think of. Because I am totally paralyzed and on a vent we qualified for the medicaid tech waiver, which allows us 16 hours per day of nursing. We live in rural VA so it is difficult to find nurses. We had one...

Hello I am a 38 year old black female and I am losing my mind worrying about als. I apologize in advance if my post upsets you but I am really losing my mind with this. Back around the end of April I noticed that my arms were not the same size. Mainly my biceps. Leading up to this one day i...

ok, semi-rant coming: So today I came home to find yet another nurse in tears. This gal is one tough cookie too so I was really surprised. I'm starting to think maybe DH is starting with some FTD. Either that or he's just being pissy to be pissy. For 6 years we have had one way of...

I guess I am still looking for answers. It seems every Dr. Visit leads to more questions instead if answers. My Dr. Is wonderful and caring, but she has a terrible habit of walking out of the room talking to her self or the nurses and not really explaining to me what's going on. But from what...

Hello Everyone, I've been thinking of you all, but wrapped up in our latest medical drama. You might recall that my dad was in the hospital for GI bleeding that was incorrectly diagnosed as Prostate Cancer. Thought that the good news was going to be the turning point, but he has been very...

From the first mention of ALS, I believed my wife would not want to live locked in, and it came as no surprise that when she prepared her advance directive, she wrote that she did not want anything done or omitted by her doctors or nurses with the intention of taking her life, but that she...

not my usual hilarious self (no really I am), but have thoughts in my head. maybe others have dealt with? I find myself reading the recent 'in memory' threads, I've started to call it the departure lounge, names I knew, people I didn't get the opportunity to. And some comments from cals in...

I am currently taking care of myself during the day, but soon I may not be able to do so and my wife may not be able to take care of me 24 hours a day. I wonder how much is the average cost of a nurse. (I am in California) At first I may need someone without much preparation, but later on, if...

My dad has taken a turn for the worst the last couple of days. He has had so much mucus build up that he's unable to cough up. He usually suctioning and won't use the cough machine much because he believes it will make it worst. His oxygen level has been lover so hospice nurses have been wanting...