nurses

  1. S

    Student life vs Caregiver life

    Hi Guys! This is my first time ever on a forum so I would definitely appreciate any kind of guidance! So what brings me here...I'm a 23 y/o caregiver to my 51 y/o mother. She's been a PALS for about 4 years now. There are 6 of us in the family but my little sister and I are the main...
  2. Scotiaspirit

    Feeling of hands around the neck

    I require more support for my neck muscles now. Spent three weeks in hospital in June with pancreatitus and enlarged spleen (it happenned just a week after getting my button inserted). I been getting bold headaches in the back right quadrant in my head. My neck muscles are weakening and I get...
  3. D

    New report on California aid in dying law

    According to the Cal Dept. of Public Health, up to 20 ALS patients have taken their own lives under California's "aid in dying" law after six months. I do not oppose the general idea of permitting physicians to assist the suicide of terminally ill patients who would otherwise suffer...
  4. Scotiaspirit

    PEG finally inserted but not without complication.

    I've been waiting since September to have Peg surgery finally on February 22nd 2017 it was successfully inserted just to the left of center in an area just below the rib cage Junctions into the abdominal muscles. The first surgeon attempted the surgery on December 8th 2016 and did not complete...
  5. D

    New Foundation to Help PALS

    Please consider forwarding this post to any attorneys, doctors, OTs, PTs, RTs, or nurses who may be interested in volunteering for a new foundation--the ALS Action Foundation (ALSAF)--whose mission is to conduct research and promote education and awareness concerning the resources available to...
  6. K

    Question on care givers

    I have a good friend who has a cousin in the Phillipines who is a nurse and is interested in coming to the US as my care giver. I know several members of this family, two of which are also nurses here in the US. The one that wants to come speaks English fluently. I would like to consider...
  7. scaredwifetx

    Steve's Peg procedure and some frustrations.

    Steve is finally sleeping for the first time today. The procedure went well with a couple of minor issues. While in surgery the doctor found some small spots on his stomach so took a biopsy. When he got into recovery he was cough in up a lot of fluid. Although I guess that could be good. The...
  8. N

    Wha medical t history do I share with neuromuscular specialist

    I have been waiting for four months to see neuromuscular specialist in Birmingham and my appointment is next week. I can barely get around in my house (bilateral "bad legs"). Neurologist I saw in June when my body was swaying like a metronome said he wanted to see me again in 6...
  9. P

    a turn for the worse

    Everything seemed to be going okay with the PEG. Then, the day before I was supposed to fly to Niger for work for a week, then Paris for a day, then MIT for a week of training, she had a little fall. She was able to get herself up somehow, crawling to the living room and hoisting herself up with...
  10. P

    the PEG and the pain and the right thing to do

    My mom went in to get her PEG today. She didn't really want it, but she said okay. I'm not really sure why. Actually, I know why. After being in denial for so long, she now will do mostly everything I suggest. It's a terrifying responsibility. I wanted her to get it because I am not ready for...
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