nurses

  1. D

    Update from Dad's Daughter and Thank You

    Hi everyone, I am so glad I stopped back in to the support forum and, miraculously, my last post was at the top of the page! A lot of those kinds of things have been happening lately... I am sorry to tell you that my father passed on December 27 at 12:45 a.m. at age 73. It was unexpected...
  2. BethU

    Wake-up Calls

    Well, it's rant 'n' rave time again. Have had a series of wake-up calls, and have finally realized that denial is not a good coping mechanism for long. Especially with ALS. My "I can manage" mentality came to a screeching halt about 3 weeks ago, my last trip to the ER, when my LightWriter...
  3. S

    Coated tongue - like thrush - anyone know anything?

    My mother has ALS, with lots of bulbar symptoms. Lately she has been inadvertently biting the insides of her cheeks when she tries to swallow. This has caused her a lot of pain with her cheeks being quite cut and chopped. The whole inside of her mouth is quite hacked up, which is making it...
  4. W

    I'm upset- the family is falling apart!

    Dad is 82 and just diagnosed with ALS on Oct 7/09. He had trouble keeping his balance about 5 years ago and was diagnosed with having a stroke. Since then, he has gradually lost strength in his legs. He started using a walker off and on about 4 years ago but he also had circulation problems in...
  5. L

    What to avoid in the hospital?

    Dad had a feeding tube placed yesterday and is still in the hospital. I have some concerns about nurses, doctors, etc who are unfamiliar with ALS. I've read that oxygen can be problematic and can create dependency. Is no level of oxygen acceptable? What about morphine? I've been quite vocal...
  6. K

    PEG feeding amounts?

    My father got his PEG on Monday, was kept overnight at the hospital, and then was released yesterday. Mom and Dad were supposed to have seen a nutritionist before Dad was discharged, but though my parents waited and waited, no one ever came. Mom says it's a good things she'd taken some notes...
  7. trying to stay positive

    Hubby is in ICU on a ventilator

    What a day this has been. I am exhausted. I got up this morning as usual and checked on Lenny. He wanted to be repositioned but was fine. Then I drove my daughter to school. When I got home I checked on him again. He wanted to be on his other side, so I repositioned him again. He said it...
  8. BethU

    CALLING ALL ZAPHOONS, PZs, and KIMS

    There seems to have been a breakdown in the Forum Follies road show due to excessive camping on the part of some of our members. I'm not casting blame ... an overwhelming urge to **** in the woods is a well-known side effect of ALS. Since a certain "Physical Zaphoon" started the whole shebang...
  9. Markbreton

    Hit a wall!

    I've been taking care of Tammy now for over 3 years. She has required help with everything now for about 6 months. Althought our insurance covers home support and they are here most of the time I've never taken a break..... Earlier this week, Tammys pej, not peg, was blocked and all attempts...
  10. D

    My Mom is gone but not forgotten

    For quite a while I have been "lurking" here, reading things people post so I could try and understand what my Mom was going through. She first starting coughing a lot in 2005. Diagnosed with the "possibility" of ALS in 2006. And officially diagnosed in early 2007. Her speech was the first...
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