nurown

  1. G

    Sept 29 FDA and Nurown

    I hoping that the FDA will pass this Nurown Sept 27 it will give so many people some hope for living. While right now there really is not much to help. Wondering if anyone else did much reading up on this it really sounds very promising. There a link on here to be able to watch the hearing...
  2. N

    Nurown

    Looks like they have the FDA Advisory meeting on Jan 11th. Seems like there are two camps (pro and con) on this drug. Best I can tell it may help some people who are not too advanced yet and have multiple rounds of treatments. Any opinions on this particular stem cell treatment and the...
  3. T

    Ques. on Brainstorm (NurOwn Trial)

    Hello: I am a cALS for my husband. I have questions about the Brainstorm Cell Therapeutics (Trial of NurOwn for ALS): 1) What are the pros and cons of this trial? 2) It seems to have promising anecdotal info. -- why aren't more people doing it? 3) When will results be published? 4) When could...
  4. J

    Brainstorm Nurown 'Right to Try' participant shares progress

    As some of you may know, Brainstorm granted one PALS free access to NurOwn as a 'thank you' for the work he did on Right to Try. He is not in a trial but is being given the course separately. His update is on Facebook -- matt.bellinski.7 Mod note -- not linking directly due to fundraising...
    • jaclyn
    • Thread
    • clinical family free fvc hope improvement lung capacity medical night nurown speech swallowing therapy treatment trial update work
    • Replies: 90
    • Forum: Research and trials
  5. C

    Mood changes

    Hi all, This is sort of an update post (last post was in the Newly Diagnosed) but I wanted to move my thread to a maybe more appropriate category. My husband has gotten a second opinion from the chief neurologist at the University of Münster in Germany, where he is from. He was also able to...
    • Cristin P
    • Thread
    • arm cals cbd death depressed diagnosis early family life mnd neurologist newly diagnosed nurown oil physical therapy progression rilutek second opinion support tests thc trial update wanted weakness worried
    • Replies: 11
    • Forum: Current caregivers
  6. jethro

    Cryopreservation

    desperate, just like everyone on this forum, i'm trying, trying... bureaucracy, science, time... everything is against us. what knocked me down is one scientist's sentence: "it is terrible to see patients dying faster then mice". time is crucial thing. my body is a weaker on a daily basis. so...
  7. J

    Brainstorm considering Right to Try for NurOwn access

    Thought you guys might be interested to hear how the Brainstorm conference call went today. Seems like the CEO Chaim Lebovits really wants to make NurOwn available but the logistics are up in the air and nothing is confirmed...
  8. MJALSWarrior

    Right to Try

    Has anyone seen anything to indicate whether the VA is going to recognize the Right to Try and allow us to try Nurown or other promising drugs under development?
  9. G

    "Right To Try" in Minnesota

    I'm hoping to get BrainStorm NurOwn stem cells. BrainStorm is hoping to get the policy in early June. So I still can play my guitar, play my drums, do yard work and ride my scooter. I can't talk to well. But I'm hoping to get NurOwn.
  10. jethro

    Nurown differences in phase II/III

    phase III nurown started. i hope so... did brainstorm make any changes in nurown? i mean, are the patients in non-placebo phase III trial group treated the same way like they did in a phase II/did brainstorm made any changes used in phase III cells compared to phase II s.cells? it will be very...
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