nuedexta

  1. Duker52

    Nuedexta

    I received my prescription for Nuedexta about two weeks ago. I asked my neurologist to prescribe it not as a mood stabilizer, but in an attempt to control my bulbar symptoms -- excess saliva, swallowing, and slurred speech. I'm happy to report that already my swallowing is much improved and my...
  2. Duker52

    Nuedexta for non-pseudobulbar affect

    Is anyone taking Nuedexta for slurred speech, swallowing, or excess saliva problems? I'm interested to hear your experience and whether or not it is relieving any of these problems. My neurologist prescribed it at my suggestion and I took my first dose yesterday. I'm just wondering if I can...
  3. Chumpy

    Nuedexta info please

    Any information on this would be great! PAL has Bulbar ALS, but not the laughing and crying. We've heard good things on the bulbar side, but concerns on side effects! Please share your experience with this medicine! Speech is almost gone, swallowing barely, FVC 40% so diaphragm is getting...
  4. lgelb

    Request for info from those taking Nuedexta

    Reposting an edited version, so I have hyperlinked Dr. Servera's e-mail below for those who wish to respond to him: My name is Emilio Servera, and I am the head of the Pulmonary Medicine Department in the Hospital Clinico Universitario in Valencia, Spain. I also run the Research Group for...
  5. F

    Feeling strange...

    I have been feeling quite, to very, strange mentally for more than a number of days now. I'm not sure what is happening with me. I did start taking Nuedexta about two and a half weeks ago.
  6. L

    Kathy is leaving us.

    My heart is breaking. Hospice was a disaster. They wanted to take her Trilogy, suction and nuedexta. I couldn't let that happen, as those are comfort items for her, imo, so I sent them away and started to look for another group that would keep the trilogy. She aspirated yesterday while...
  7. V

    Nuedexta and riluzole

    So my dad(newly diagnosed) was prescribed Nuedexta and Riluzole this week. His doctor told him to start one medication at a time. So he is to take Riluzole for two weeks then start Nuedexta. He is about one week into riluzole now...is there any harm is starting nuedexta one week early? He is...
  8. V

    Nuedexta

    This was on the front page of News "CNS is pleased to report that the recently completed Nuedexta ALS treatment trial was a resounding success. The nationwide study, conducted at seven NEALS research sites, convincingly demonstrated that Nuedexta can enhance speech and swallowing in ALS...
  9. dkcarl62

    Nuedexta and increased spasticity?

    Has anyone taken Nuedexta and had a problem with increased spasticity? I took my first dose Thurs night, and Friday morning I froze up in the middle of my kitchen with my walker. My knees would not bend, and I couldn't walk. Not making a connection, I continued with the nightly dose, and Sat...
  10. N

    Delicate question about a crappy subject...

    I know a lot of PALS have issues with constipation but does anyone have any insight into the opposite problem? I seem to have to go all the time. It's not diarrhea but less than... optimal let's say. I'm on Nuedexta and Riluzole (although it started prior to taking Riluzole). I've cycled out...
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