nose

  1. A

    cough assist plus vest really helping

    the hospice nurse arrived just after my daily vibrating vest treatment followed by cough assist. She was amazed at how clear my lungs sounded. We are able to remove lots of mucous after the treatment and I strongly believe it is buying more quality time. it took time in the beginning with lots...
  2. P

    Is this the beginning of ALS?

    This week is a particularly troubling week for me, with many distressing symptoms. First there was difficulty breathing. Monday night, after having eaten more than I needed, I started having apnea when lying down. The thing is I waited a few hours before going to bed to minimize discomfort from...
    • protein
    • Thread
    • als als? arm arm weakness atrophy bed breathing burning cry diaphragm distressing symptoms early exercise fasciculations fatigue fingers hope night nose pressure problem shortness of breath sleep symptoms weakness worried
    • Replies: 9
    • Forum: Could this be ALS?
  3. F

    Muscle weakness, atrophy

    Hello all, First I would like to say my heart goes out to those struggling with this horrible disease. I’m writing today to ask opinions about my Dad’s situation. I will try to be brief, but thorough. Nov. 2017 - Dad swears he remembers falling while outside, and then getting up and moving...
    • firefly34
    • Thread
    • ability arm weakness atrophy brain breathing christmas emg falling fingers frustrated go away heart mri muscle muscle twitching nose pain power support symptoms test tests twitching urgent weakness wheelchair
    • Replies: 2
    • Forum: Could this be ALS?
  4. I

    hospital bed, mattress, pressure sores, dynavox, oh my!!!

    At our latest clinic visit we were advised that it was time for yet even more equipment than we were prepared to hear. Time for hospital bed, special mattress, dynavox for speech and change in PEG formula. This has left me with little time to research therefore I am asking those who have been...
    • initforever
    • Thread
    • advice back bed clinic coconut oil dynavox equipment mattress nose oil peg pressure pressure sores progression research speech trilogy worried
    • Replies: 6
    • Forum: Current caregivers
  5. W

    Confused

    For some 10 years now I have had problems almost permanently, although good periods and not so good periods with my mouth. Difficulties with lips feeling fatigued after talking at length. Difficulties with my tongue in the same regard. Sometimes dry mouth, sometimes an apparent excess of saliva...
    • Watts41
    • Thread
    • als confused dry mouth mri nose problems progression reading saliva swallowing symptoms tongue twitching
    • Replies: 3
    • Forum: Could this be ALS?
  6. T

    Looking for insight

    Hi everyone. Looking for some input as I see you all are very kind and knowledge able. About two months ago I started difficulty swallowing abruptly out of nowhere. It's constant , I can swallow solids although pieces get stuck above Adams apple and I need to sip water most bites. Saliva seems...
    • Truss
    • Thread
    • back bulbar bulbar onset dry mouth dysphagia fatigue food nose onset reading saliva swallowing tongue voice wrists
    • Replies: 8
    • Forum: Could this be ALS?
  7. R

    Back on here after a long time

    Hi All, My last post on here was almost 2 years ago, about the time i was having my 4th EMG, which came out clear of any serious issues, i wont lie and say everything went back to normal after that, i did have my bouts of weakness, twitching, new symptoms etc etc but since September 2017 ive...
    • Robb
    • Thread
    • als do i have it back breathing coughing eating emg family fasciculations food ice meds mnd muscles nose pressure reading steroids stress swallowing swallowing issues symptoms test tongue twitching voice weakness worried wrong
    • Replies: 17
    • Forum: Could this be ALS?
  8. C

    Respiratory Onset- Update

    Thought I would give status on my husband for those few with this ALS type. After 10 months of tests, his final diagnosis was July 2017. He is weakening and hasn’t left house for several months. Just better since breathing is very tough. He is on trilogy 18 hours a day. A blessing that...
    • Chrismarie
    • Thread
    • als anxiety breathing bulbar clinic diagnosis hospice hours morphine nose onset pain respiratory respiratory onset symptoms tests trilogy update walker weakness
    • Replies: 2
    • Forum: General discussion about ALS/MND
  9. L

    18 years old.

    Hi, everyone, before I say anything, let me say that I’m a REALLY anxious person. I have really bad social anxiety, health anxiety, basically any form of anxiety. About 8 months ago, I ended up getting this bad pain that basically started at my lower back, that migrated to my left arm, to the...
    • lonelyshredder
    • Thread
    • 18 years old advice arm back clinical conversation disability mobility money night nose pain paralysis pressure scared sleep spasms speech stress swallowing symptom symptoms twitches twitching weakness wrong
    • Replies: 13
    • Forum: Could this be ALS?
  10. E

    25 Yo male, got some concerns

    Hi everyone, I want your opinions in my case. I am a 25 yo male, living in Netherlands and for the past 2 months i have been experiencing some symptoms. I know it is almost impossible to have als at my age with no family history, but the anxiety these past months is creating other problems in...
    • esel
    • Thread
    • advice age als arm arm weakness atrophy bed christmas clinical eyes family family history fasciculations fingers hyperreflexia life lift neurologist night nose shoulder stress symptoms testing twitching weakness wrong
    • Replies: 1
    • Forum: Could this be ALS?
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