no diagnosis

  1. O

    Worried regarding new symptoms and test results

    Dear All, I had been on here in 2014 with some complaints about twitching and muscle weakness, over the past 3 years it has stayed with me and gotten worse to some extent. I have been to many doctors and Neuro's and had 3 EMG, last was early last year on my limbs but doctors didn't pick up...
  2. M

    12 months struggling, still no diagnosis

    Hi, my husband has some neurological problem, as yet undiagnosed. His legs feel heavy and stiff to move, particularly walking up stairs or slopes, he says it is like wading through chest deep mud. There is no pain as such just an almost physical resistance. Like he is wearing a lead suit. He...
  3. M

    Sleeping Comfortably

    My fvc drops 25% when I lay down and I can't keep myself from falling over sideways (no matter how many bolsters) when propped up. I considered a medical bed, but after several nights in hospital falling to side, I finally got an electric Lazyboy instead. It has been such a godsend. I got one...
  4. T

    Ongoing nightmare

    Dear all, ty in advance for taking the time to read my thread, i appreciate it. I'm very ill with little to no answer why. My symptoms began in feb. 2014 with a major panic attack followed by the unleashing of several symptoms- back of the head pressure, trouble swallowing, ears feeling...
  5. G

    Unusual onset pattern

    To all the CALS and PALS, I have been on this site now for three months. I have been to a PCP, neurologist, and neuromuscular specialist. I have had clinical exams and two clean/normal EMGs. I have had every test run on me, and yet, there has been no diagnosis. Since June, I have had...
  6. D

    Potential ALS no diagnosis

    Hi all. I'm hoping for some help. 2 months ago I experienced an unusual headache with tingling and numbness to the left side of my body which I had never experienced previously. I went to ED and had brain scans and blood tests. They came back clear. I have since had a spinal mri as well as an...
  7. L

    Does my husband have ALS

    Feb'15 my husband started having fasciculation's. July'15 he noticed weakness in his left hand. Oct'15 he visited a neuromuscular dr at Cleveland Clinic who mentioned that my husband has more fasciculation's than he's seen in years. However a 3 hour EMG was clean and there were no noticeable...
  8. H

    Still no diagnosis...

    Hi All, I posted back in October as I was having some worrying symptoms. My symptoms have progressed and I am still no closer to a diagnosis. Current symptoms: My issues began in my left forearm 10 months ago. This is by far the most affected region but symptoms have spread to other muscles...
  9. L

    Hello. I'm at a loss...

    Hello again. Thank you for taking the time to read (and possibly respond) this this post. I am at a total loss. I'm now 39, and I have tried to get answers for a little over a year, but I just keep getting insidiously worse. I don't know who to ask or what to do. I am very well aware that you...
  10. S

    Plenty of Real Symptoms and EMGs, but No Diagnosis?

    Hi There, I have to start by saying how wonderful all of you and this site are. Your giving of such important personal information is really amazing and so helpful. I am scared to go here, but could this be some sort of thoracic onset? I am a 39 year old woman. Does that happen? My symptoms...
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