nih

  1. S

    neuro visit

    Hi, Well today was another neuro visit for Larry.Nothing new doc said he is humbled because he doesn't know what is wrong all he can say is MND,He said it could be parts of 4 different diseases,he has another patient very similar to Larry & she has been in contact with NIH so he is seeing she...
  2. shelleynshaggy

    Our Latest Clinic Visit

    On Wednesday Jim had his 3rd ALS Clinic appointment. The day started out with a commute of over two and a half hours to get to the Cleveland Clinic (which is about 25 miles away.) After being over an hour late his first stop was occupational and physical therapy. Interestingly enough despite...
    • shelleynshaggy
    • Thread
    • ability als arm back biopsy breathing christmas clinic dad dementia early eating ftd health hours increase kids life lifts lung capacity mri neurologist nih pennsylvania physical therapy pressure problem pulmonary function test reflex research stem cells support swallow symptom test testing tests therapy vacation wanted
    • Replies: 0
    • Forum: Current caregivers
  3. olly

    hemiplegic pls

    hello everyone. sorry i have not been about for a week or two,alot been going on. i had my neuro appointment last week,it was with another neuro as mine of 11yrs has retired. when i first got ill on odd occasions i temporarily numb weakness down my left hand side of the body lasting days to a...
  4. sadiemae

    Interesting read

    Measures and Markers in Amyotrophic Lateral Sclerosis
  5. shelleynshaggy

    Back from the FTD Conference

    This past week Jim's Aunt Mary and I attended the 7th International Conference on FTD in Indianapolis, IN. Though the actual caregiver portion of the conference was only one day - it kept my whole week full! To start at square one: Monday was probably the worst day Jim had yet. He was just very...
    • shelleynshaggy
    • Thread
    • ability age back bed book brain brother canada caregiver children conference diagnosed documents family fell free ftd ice indianapolis kids motor neuron disease neurologist nih problems support trip website women young
    • Replies: 2
    • Forum: ALS and frontotemporal dementia
  6. olly

    info for newcomers

    we are getting alot more new comers to the pls forum with questions. pls is one of the rare neurological illnesses,very hard to diagnosed and there is still not much known about it. i have done alot of research over the past few years since my diagnosed. there is not a great deal of info...
    • olly
    • Thread
    • caregiving free fundraising info information neurology nih pls questions research stroke symptoms update
    • Replies: 15
    • Forum: Primary lateral sclerosis
  7. C

    ALS vs Poliovirus

    Hi pals [Neurotropic viruses--classification, structure an... [Nippon Rinsho. 1997] - PubMed result and here we have a list of culprits. Which are very much the same.How hard would it be to biopsi the motor neuron and spinal tissue for this. Hope all is well Curetime
  8. B

    "The Beast"

    When will the Hurt end? Over the past year I have been keeping up with the lives of many ALS victims I have been encouraged and saddened by many experiences that I been exposed to — It is now time for me to share my story – I hope it can help encourage, prepare or comfort someone during their...
    • boomiss
    • Thread
    • abdomen als anger angry antioxidants back betrayal chair cold cramps death denial desperation diaphragm early emg exhaustion family fear hope hours immediately life medical medicine muscle muscle weakness muscles neurologist never give up night nih pneumonia problem reading risk scared stem cell treatment stem cells story symptoms tests therapy thumb treatments trip twitching ventilator wanted weakness worry wrong
    • Replies: 13
    • Forum: In memory of
  9. C

    Gene therapy.

    Hi, just read this, always looking for some good news. Best wishes to all, Cherry. Another breakthrough on the horizon -- one for ALS. People who get the devastating diagnosis are often told they only have a few years to live. Now, gene therapy could add years to their life. "We hope to...
    • Cherry
    • Thread
    • als clinical cure diabetes diagnosis grant hope information life lou gehrig's disease nih progression therapy treatment
    • Replies: 5
    • Forum: General discussion about ALS/MND
  10. C

    $3.7 Million NIH Grant Will Fund Study On Stem Cells Derived From ALS Patients

    $3.7 Million NIH Grant Will Fund Study On Stem Cells Derived From ALS Patients Keeping the faith if not a cure is found perhaps something can be done to stop progression. Christy
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