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Hello all, Let me tell you my whole story... I started having pain(muscle ache) in my shoulder March first. Went to a redicare Dr on March 11th and let the Dr know the muscle pain is also in my arm as well as shoulder and moving around. Was told this was myalagia and to follow up with primary...

hello I can hardly open mouth wide enough to get spoon full of soup or mashed potatoes in. The doctor has me at eighty milligrams Baclofen a day but only gives little relief. My jaw is so tight and teeth are clenched throughout day and night. anyone experience something similar? Did anything...

My mother was diagnosed last year. The majority of her body has succumbed to ALS. She can still speak, move her left arm, and her neck. Over the past few weeks, her mental state has changed. She has always been someone who speaks her mind, and in some cases - should not - but rarely to...

My wife uses the Trilogy about 12 hours a night and then about 2 hours with an afternoon nap. Her last FVC test score was 25. Is there a “normal or expected” progression of needing to spend more time on the Trilogy? I saw on one post that the pals was on the Trilogy 24 hours a day. Can that be...

I've been considering getting the I Robot vacuum ever since Nikki posted about it. I finally bought the 960, and I'm in LOVE. It gets the hard floors very clean!! The first time it ran it was all over the place, but now that it's mapped the house, it's very efficient. We vacuumed or dust...

I started having twitching in my calves on March 20, 2018. It was constant and a bit amusing at first- I would put my leg on my husband and make him feel it going crazy. After several weeks, I started noticing that my legs were getting a jello feeling, especially if I was walking on my...

My wife is on the noninvasive ventilator 12 hours at night and looks forward to that time — except that there are nights when she has leg pain most of the night. These pains are debilitating and don’t respond to Tylenol, Hylands Leg Cramp pills, heat, cold, massage. I reposition her 3-4 times...

My name is Patrick and I'm a 25 year old male in the UK. I feel quite certain that I have ALS and I was wondering if anyone had any kind advice to offer. Apologies for the long post but I feel like the onset of symptoms has been quite odd and perhaps worth sharing. The story starts six weeks...

Our clinic doctor prescribed Curcumin (we use Theracurmin) several weeks ago. 90 mg twice per day. He increased the doses to three times a day on our last clinic visit and indicated that my wife could take 180 mg twice per day instead of 90 mg three times a day. I noticed that my wife...

Does anyone know how to alleviate shoulder blade & lower back pain? It happens at night when I go to sleep. I'm using pressure alternating air mattress . It doesn't help much. Lateral rotating bed is too expensive and it's not covered by Medicare.