newly diagnosed

  1. M

    Newly diagnosed

    Hi my name is missy, I was diagnosed on Friday December 29 2017, after my 2nd emg and around thanksgiving my speaking and swallowing has been greatly affected I have lost 35lbs, I'm going to the clinic on the 18th of Jan, but part of me feels like I won't make it that long, breathing is terrible...
    • Missc1118
    • Thread
    • 2nd emg als arm breathing clinic diagnose diagnosed emg family newly diagnosed onset shoulder swallowing symptoms symptoms? wanted
    • Replies: 7
    • Forum: Newly diagnosed
  2. R

    Newly Diagnosed at Mayo Thanksgiving 2017

    I was diagnosed Wed before Thanksgiving 2017! I went to Mayo believing I had NPH (normal Pressure Hydrocepheous) I had been to 4 local Neurologist and all felt it was NPH, but because Spinal Tap and draining 40 CC of spinal fluid didn't help, we ere playing "stump the doctor" EMGs on Legs were...
    • Romeosc
    • Thread
    • advice age back balance bed brain chair diagnosis falling fals father healing lift neurologist newly diagnosed pls pressure radicava ramp riluzole sleep social security surgery symptoms walker wheelchair
    • Replies: 9
    • Forum: Newly diagnosed
  3. Chincoteaguer

    Husband caregiver newly diagnosed

    Hello. My wife was diagnosed with ALS 12-20-17 after months of symptoms. She has been through so much in the last two years that the symptoms were overlooked by her doctors. She had surgery for breast cancer 01-2016; heavy chemo for 18 weeks; 33 radiation treatments; broken pelvis from fall...
    • Chincoteaguer
    • Thread
    • als caregiver clinic diagnose diagnosed foot hope hours husband neurologist newly diagnosed questions second opinion surgery symptoms treatments
    • Replies: 43
    • Forum: Newly diagnosed
  4. MJALSWarrior

    Newly diagnosed

    Diagnosed at Ralph H Johnson VA Medical Center on December 5th. 58 yo Navy veteran. Not a surprise as I have had some symptoms for the last year or so. Ready for a fight. I beat cancer, this might be a little harder.
  5. R

    Newly diagnosed. Need advice

    Hi, My mother was diagnosed with ALS last month. She is declining quickly. Her legs are getting weaker day by day. She finds it hard to get up from the bed or walk. The doctor said her condition is progressing quickly than expected. Maybe she will be needing the wheelchair to be mobile sooner...
    • Richbanks
    • Thread
    • advice als bed diagnosed hours newly diagnosed wheelchair
    • Replies: 7
    • Forum: Newly diagnosed
  6. C

    Newly Diagnosed with Bulbar

    a woman I have been caring for was recently diagnosed with bulbar ALS.... she is in the advanced stages... she has lost sooo much weight and has a lot of difficulty swallowing and talking at this point. Can anyone please give me any tips on caring for her. pls any tips at all would be so...
  7. J

    Bulbar Onset Diagnosis - Nasal blockage

    Hi, I'm back! After my husband's diagnosis a couple of months ago, we have been travelling and visiting friends and family so our feet haven't touched the ground. but back to reality now for a few weeks before we go off again! Firstly, thank you all so much for taking time to reply to mine...
    • jcmatch
    • Thread
    • advice back breathing bulbar bulbar onset cals clinic cure diagnosed diagnosis family helpful information newly diagnosed night onset sleep software speech voice
    • Replies: 9
    • Forum: Newly diagnosed
  8. Kristina1

    in person support groups

    Sorry in advance that this is long. I had Clinic today, and it so happened that at the same time as my visit the local ALS association support group was going on (they meet in the conference room at my ALS Clinic). Since there was a delay between seeing pulmonary and waiting for neuro they...
    • Kristina1
    • Thread
    • als cals clinic conference crying diagnosed diagnosis early falling grief newly diagnosed support wanted
    • Replies: 7
    • Forum: People with ALS (PALS)
  9. M

    Radicava / Edavarone - DENIED!! Help?

    Hi! I was newly diagnosed in March 2017, but problems started around Aug or Sept 2016. So I'm less than 1 year in and doing ok for now, but yes, I'm declining. Anyway, I was hopeful to go to my 2nd ALS clinic visit because I thought I could get Radicava. My clinic date was 8/4. My doctor said...
    • mariposa13
    • Thread
    • als back clinic clinical clinical trial diagnosed fvc heart helpful information medical newly diagnosed problems radicava support treatment trial
    • Replies: 29
    • Forum: General discussion about ALS/MND
  10. Serval

    Newly Diagnosed with PMA

    Not sure that anyone looks at this site based on the date of the last posting. But, I wanted to say hello
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