newly diagnosed

  1. A

    Fast progression

    Hello to all, I posted recently in the Newly Diagnosed forum about my mother. Since she was diagnosed in early August, she seems to be progressing quicker than I expected. In 8 weeks she has gone from slight slurring of words and a small limp, to basically unintelligible speech and the need...
    • AliCat
    • Thread
    • caregiver diagnosed early newly diagnosed pain progression scared speech walker wheelchair work
    • Replies: 5
    • Forum: Current caregivers
  2. C

    Mood changes

    Hi all, This is sort of an update post (last post was in the Newly Diagnosed) but I wanted to move my thread to a maybe more appropriate category. My husband has gotten a second opinion from the chief neurologist at the University of Münster in Germany, where he is from. He was also able to...
    • Cristin P
    • Thread
    • arm cals cbd death depressed diagnosis early family life mnd neurologist newly diagnosed nurown oil physical therapy progression rilutek second opinion support tests thc trial update wanted weakness worried
    • Replies: 11
    • Forum: Current caregivers
  3. Clearwater AL

    Interesting...

    My screen has not shown a new thread on the Newly Diagnosed sub-forum since 9/9/18. Gee... today is 9/24/18. Interesting. :-)
  4. S

    CALS for newly diagnosed

    My husband, the love of my life was diagnosed with the slow moving ALS 2 months ago. I have been freaking out and crying and a complete mess. I think I am sort of in control now. He has remained in control the whole time and says that he can’t afford to break down since he does not know how...
    • Scarlett0123
    • Thread
    • als cals clinic crying diagnose diagnosed diagnosis life love muscle muscle wasting newly diagnosed weakness
    • Replies: 5
    • Forum: Newly diagnosed
  5. D

    I am so afraid...Is this ALS?

    Hello everyone, First of all, i am sorry for all who are newly diagnosed, hold on and don't give up untill your last breath! I don't know what is happening with me recently but i hope that is not ALS. However i will have EMG test on August 20th and i will know the truth. I am ready for the...
    • Dreamcatcher
    • Thread
    • ache advice age als als? autoimmune diagnosed emg female hope is this als is this als? lyme lyme disease mri newly diagnosed pain symptoms test tests wrist
    • Replies: 4
    • Forum: Could this be ALS?
  6. B

    Newly diagnosed

    Hello everyone, After having received a diagnosis of PLS 7 months ago, my doctor changed the diagnosis to ALS 2 weeks ago based on lower motor neuron symptoms. I've been on riluzole for 3 months, and just signed the paperwork to start radicava. My mind is definitely spinning at the moment, so I...
    • bostongrl
    • Thread
    • als diagnose diagnosed diagnosis motor neuron symptoms newly diagnosed pls questions radicava riluzole symptoms wanted
    • Replies: 8
    • Forum: Newly diagnosed
  7. V

    Medicare Question

    ISO some medicare help here. My husband is newly diagnosed and being seen at the John Hopkins Clinic. At our appointment last week, it was suggested we go ahead and get the medicare paperwork in and started. My husband is very early stages and only has some weakening in his hands and arms...
  8. C

    Gaining strength back in weak hand/arm?

    My Dad is newly diagnosed at 59 years old. He’s always been in great shape, on a hockey team, long distance bike rider, and golfer. When his hand weakness started a year ago he slowly began to lose strength in hand and then some muscle atrophy in same arm along with twitching. My question is...
    • Cherise77
    • Thread
    • advice arm atrophy back clinic dad diagnosed ice improvement muscle newly diagnosed support twitching wanted weakness
    • Replies: 4
    • Forum: Newly diagnosed
  9. I

    Husband newly diagnosed

    Hello Everyone, we’re having a really rough day today so I decided it’s time for me to reach out. My husband got his first diagnosis 5/21/18 and a second opinion confirmed it 6/14. He started noticing weakness in his arms on one side just after Thanksgiving. It then progressed to the other...
    • Islander1019
    • Thread
    • als angry brain dad diagnose diagnosed diagnosis emg family hearing husband insurance mri neurologist newly diagnosed planning problem reading sad second opinion support testing tests therapy weakness work
    • Replies: 17
    • Forum: Newly diagnosed
  10. G

    Newly diagnosed

    I was diagnosed by a neurologist about 5 weeks ago after two EMGs and MRIs confirmed his suspicions. I'm not sure how long I've had this as I was in treatment for Lymphoma in 2014 and never fully recovered from Chemotherapy. Now that I have done some research, I think I was passing off some...
    • Grhbr
    • Thread
    • advice als book breathing caregiver clinic diagnose diagnosed fatigue feeding female hospice neurologist newly diagnosed problems research support swallowing symptoms symptoms of als tests travel treatment voice walker
    • Replies: 21
    • Forum: Newly diagnosed
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