newly diagnosed

  1. Clearwater AL

    Interesting...

    My screen has not shown a new thread on the Newly Diagnosed sub-forum since 9/9/18. Gee... today is 9/24/18. Interesting. :-)
  2. S

    CALS for newly diagnosed

    My husband, the love of my life was diagnosed with the slow moving ALS 2 months ago. I have been freaking out and crying and a complete mess. I think I am sort of in control now. He has remained in control the whole time and says that he can’t afford to break down since he does not know how...
  3. D

    I am so afraid...Is this ALS?

    Hello everyone, First of all, i am sorry for all who are newly diagnosed, hold on and don't give up untill your last breath! I don't know what is happening with me recently but i hope that is not ALS. However i will have EMG test on August 20th and i will know the truth. I am ready for the...
  4. B

    Newly diagnosed

    Hello everyone, After having received a diagnosis of PLS 7 months ago, my doctor changed the diagnosis to ALS 2 weeks ago based on lower motor neuron symptoms. I've been on riluzole for 3 months, and just signed the paperwork to start radicava. My mind is definitely spinning at the moment, so I...
  5. V

    Medicare Question

    ISO some medicare help here. My husband is newly diagnosed and being seen at the John Hopkins Clinic. At our appointment last week, it was suggested we go ahead and get the medicare paperwork in and started. My husband is very early stages and only has some weakening in his hands and arms...
  6. C

    Gaining strength back in weak hand/arm?

    My Dad is newly diagnosed at 59 years old. He’s always been in great shape, on a hockey team, long distance bike rider, and golfer. When his hand weakness started a year ago he slowly began to lose strength in hand and then some muscle atrophy in same arm along with twitching. My question is...
  7. I

    Husband newly diagnosed

    Hello Everyone, we’re having a really rough day today so I decided it’s time for me to reach out. My husband got his first diagnosis 5/21/18 and a second opinion confirmed it 6/14. He started noticing weakness in his arms on one side just after Thanksgiving. It then progressed to the other...
  8. G

    Newly diagnosed

    I was diagnosed by a neurologist about 5 weeks ago after two EMGs and MRIs confirmed his suspicions. I'm not sure how long I've had this as I was in treatment for Lymphoma in 2014 and never fully recovered from Chemotherapy. Now that I have done some research, I think I was passing off some...
  9. V

    Newly Diagnosed Question

    My husband was recently diagnosed with ALS after a battery of tests from a referred Neurologists who suggest we get a second opinion. In the DC area we have John Hopkins, Georgetown and George Washington hospitals to choose from - all who have ALS clinics. We have appointments at both Hopkins...
  10. M

    Father newly diagnosed

    Hi All, This past Friday, my father was diagnosed with “some form” of ALS by a neuromuscular specialist. He is being sent to an ALS center near him in Potomac, MD, and will get more details on form, prognosis, etc. At this point we know very little, but what we do know - the diagnosis - is...
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