Hello to all,
I posted recently in the Newly Diagnosed forum about my mother. Since she was diagnosed in early August, she seems to be progressing quicker than I expected. In 8 weeks she has gone from slight slurring of words and a small limp, to basically unintelligible speech and the need...
Hi all,
This is sort of an update post (last post was in the Newly Diagnosed) but I wanted to move my thread to a maybe more appropriate category.
My husband has gotten a second opinion from the chief neurologist at the University of Münster in Germany, where he is from. He was also able to...
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My husband, the love of my life was diagnosed with the slow moving ALS 2 months ago. I have been freaking out and crying and a complete mess. I think I am sort of in control now. He has remained in control the whole time and says that he can’t afford to break down since he does not know how...
Hello everyone,
First of all, i am sorry for all who are newly diagnosed, hold on and don't give up untill your last breath!
I don't know what is happening with me recently but i hope that is not ALS. However i will have EMG test on August 20th and i will know the truth. I am ready for the...
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Hello everyone,
After having received a diagnosis of PLS 7 months ago, my doctor changed the diagnosis to ALS 2 weeks ago based on lower motor neuron symptoms. I've been on riluzole for 3 months, and just signed the paperwork to start radicava. My mind is definitely spinning at the moment, so I...
ISO some medicare help here. My husband is newly diagnosed and being seen at the John Hopkins Clinic. At our appointment last week, it was suggested we go ahead and get the medicare paperwork in and started. My husband is very early stages and only has some weakening in his hands and arms...
My Dad is newly diagnosed at 59 years old. He’s always been in great shape, on a hockey team, long distance bike rider, and golfer. When his hand weakness started a year ago he slowly began to lose strength in hand and then some muscle atrophy in same arm along with twitching.
My question is...
Hello Everyone, we’re having a really rough day today so I decided it’s time for me to reach out. My husband got his first diagnosis 5/21/18 and a second opinion confirmed it 6/14.
He started noticing weakness in his arms on one side just after Thanksgiving. It then progressed to the other...
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I was diagnosed by a neurologist about 5 weeks ago after two EMGs and MRIs confirmed his suspicions. I'm not sure how long I've had this as I was in treatment for Lymphoma in 2014 and never fully recovered from Chemotherapy. Now that I have done some research, I think I was passing off some...
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