newly diagnosed

  1. N

    Daughter of newly diagnosed ALS patient.

    Hi there- My mother was just diagnosed with ALS this week. She recently relocated to my state to be closer and therefore has no support system here other than me. On top of that I'm a only child (single with no kids) and her family only consists one brother that lives in a different state. I'm...
  2. mare

    Here's what I know for sure- (for the newly diagnosed)

    In my very limited (1 person), unscientific, unqualified, and undocumented "trial", this is what I know for sure: Without his PWC, (which he has had since Oct. '09) my PALS used his rollator more, so as not to bother me :-(. A transport w/c was used but these are smaller & shorter than the PWC...
  3. indigosd

    MDA Tells Anyone's Life Story in May

    Carla is featured! She truly left us laughing. Any of the rest of our forum family or facebook family included in this article? MDA Tells Anyone's Life Story in May! Chuck Gunther and Rowdy of Cody, Wyoming A cowboy shows city slickers how to ride and leads pack trips into the...
  4. Ladyinn

    Yureka!

    After much frustration, I do believe I have figured out how to post on this forum.... Maybe I should change my user name to "slow learner"! :) I am newly diagnosed (November '09). I'm widowed, own a business, care for my 84 year old mother and always thought I was strong. You know the type -...
  5. P

    Newly diagnosed grandfather and not sure what to expect.

    Several years ago my grandmother went through several health problems, including a couple heart attacks, alot of hospital stays, and losing her leg to gangrene (not diabetes related). My grandfather (they raised me all my life, so basically my dad) took care of her throughout all of this. He was...
  6. Danijela

    Two years on - an update

    Hello to all. I have been meaning to write for some time, but with the two month old baby there is never enough time. Quick recap - my partner started with first symptoms 2 years and 3 months ago, weakness and extreme atrophy of his left hand and then forearm. He was diagnosed relatively...
  7. S

    I'm scared and feel like giving up

    I'm newly diagnosed with PLS. I have been on so many different medications over the years only to find out that none of them would help me in the end. I'm slowly losing the use of my legs, my left side is getting weak and now I talk like I'm drunk and choke on my own saliva. I had Guillian...
  8. F

    Newly Diagnosed & New to the Forum

    In the last two weeks, I've been diagnosed with familial ALS. Been having symptoms for several months & finally realized it wasn't getting better and started the process of getting answers. Really expected it to be MS and not ALS. Mom has MS. Dad, Grandpa, great-grandpa, aunt, and a couple...
  9. T

    Is diarrhea a sympton of pbp when being peg fed?

    My Father-in-law was newly diagnosed in July '09 with Agressive PBP His condition has rapidly deteriorated over the last few weeks, he was fitted with the peg on 31st July after massive weight loss, he has almost lost complete use of his limbs but has had diarrhea since being fitted with the...
  10. L

    ALS Newly Diagnosed

    Dead End Ahead? Contracting ALS (amyotrophic lateral sclerosis) is among one of life's most troubling diagnosis, it has no cure. Even a veteran neurologist has a tough time reaching this dreadful conclusion. When the testing begins, your surroundings turn to black and white followed by long...
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