newly diagnosed

  1. S

    Newly diagnosed... staying optomistic

    Hi everyone - my name is Mike and I was diagnosed with ALS about two months ago. I've been reading some posts on the forum and I've really been inspired by everyone, so I thought I would share my story. I'm 31 years old, and started getting symptoms about a year ago when I noticed weakness in...
    • Shankopotomas
    • Thread
    • als back brain cramping cramps diagnosed diagnosis emg fatigue fingers life lift mnd mri muscle muscle wasting newly diagnosed reading story symptoms tests trial twitching weakness
    • Replies: 24
    • Forum: People with ALS (PALS)
  2. M

    Husband newly diagnosed

    and here I am. Ive been trolling these boards hoping that maybe I'd never need to officially register. Well, we have a second opinion from a very respected Neuro at MGH in Boston. 41 yo Husband had weakness in hand starting in April. Went from Carpal Tunnel, to possible pinched nerve, to OMG...
  3. L

    Newly Diagnosed

    Hi Everyone ! My name is Laura and I have been lurking here off and on since January. I was diagnosed with ALS yesterday at the Mayo Clinic in Arizona. I didn't want to post until I had a diagnosis and I was trying not to panic. I am also a licensed practical nurse. Last summer I started...
    • llwlpn
    • Thread
    • als ankle arm atrophy back brain clinic diagnose diagnosed diagnosis emg family fingers kids mistake motor neuron symptoms movement mri neurologist newly diagnosed problem pulmonary function test symptoms test twitching wanted weakness work worry
    • Replies: 18
    • Forum: People with ALS (PALS)
  4. S

    physical therapy

    I am newly diagnosed and wanted to know what kind of physical therapy are others doing if any? I know that we should not overdo but just wanted to know how others are exercising. Is anyone doing pool therapy?
  5. R

    What can I learn/do about my immune system?

    As newly diagnosed with MMN, and having been fit & healthy to date, I would like to understand more about my immune system & what I can do about it, if at all. I'm interested in other people's learnings from your condition and treatment - altho' I get it's very individual, eg: stress & work...
  6. C

    Diagnosed with ALS 3 weeks ago

    trying hard not to dwell on how long it's going to take before i turn into a drooling pile of goo that can't walk or feed myself. can't seem to shake the gloom and doom...normal for a newly diagnosed person?
  7. Chris_b

    Newly Diagnosed

    Hi all, my names Chris, 35 years old from St helens near Liverpool. I unfortunatly got diagnosed with MND on July 8th of this year. To say my family and I are devestated is an understatement! In may this year I was looking forward to getting married to my girlfriend of 4 years, the date was set...
    • Chris_b
    • Thread
    • advice age arm diagnose diagnosed family mnd newly diagnosed reading twitching unsure weakness wrong
    • Replies: 6
    • Forum: New members
  8. B

    Sister newly diagnosed ALS

    I'm new to this site and this forum and I'm happy to have a place to go and ask questions. I know very little about this disease, but I am learning and willing to learn more. My sister was diagnosed a few months ago. Her left leg is largely affected and she wears a brace. Her arms and right...
    • BigSista
    • Thread
    • advice als brother caregivers diagnosed family fasciculation kids life newly diagnosed newly diagnosed als progression questions young
    • Replies: 22
    • Forum: Current caregivers
  9. Lavender Lady

    Newly diagnosed with ALS

    It is with great sadness that I have to say this.:-( I am not certain what I feel but I do know that God is in control. Our boys are very sad but are handeling it as well as can be expected, they are growing up so fast. thank you to everyone who has offered to answer my threads as I have...
  10. C

    Newly Diagnosed

    I am a 35 year old female and have just been diagnosed with mmn with cb. I had my first ivig teatment 2 weeks ago and am still feeling light headed and getting headaches. I was hoping I could find out how everyone else feels as they go along in their treatment
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