newly diagnosed

Newly diagnosed hubby. Getting weaker in arms and legs now, but mainly bulbar problems for at least twelve months. It's all happening so fast now. He is 57 this year. Its been so helpful to read everyones posts. The neuro, gp and books can describe the disease but they dont prepare you for what...

My husband has been diagnosed with ALS - this past month. He has both bulbar and limb onset. The bulbar symptoms are the worst...The panic in his eyes when he is choking is just awful. We are trying to do the best we can in coping with the Wicked Step Sister that has moved in and is trying to...

Hi, I have been on this site off and on for some time with symptoms and questions etc. Unfortunately in the last couple of weeks I ave been given the diagnosis of "motor neuron disease>anterior horn cell". All of my symptoms seem to stay within the LMND aspect, not ALS. I am one those that...

Hi all, It has been a little over a week since my diagnosis and this is my first post. my symptoms seem to progress on a daily basis. I have been essentially bed bound in my condo with a livein caretaker for a few months. I have a 90 year old, healthy mom nearby and a son, daughter in law and...

Newly diagnosed...I have the weakness, the "almost going to sleep feeling in my legs and feet" the almost pins and needles effect..my question is does this ever go away or is this something that just continues to spread thoughout your whole body eventually ? I was told that ALS is virtually...

hi all , i have been lurking on here for the past few months as i thought the dreaded diagnosis was coming. my symptoms started almost 4 years ago with right foot drop which progressed upwards in my leg , with left foot symptoms starting a year ago . i now have left foot drop and am continuing...

After 18 months of progressive weakness, curling of the hand, atrophy and facsiculations I have now been diagnosed with ALS, the worst part about it was the fact that I was so worried months ago and my neuro said it was mmn and was giving me ivig. I thought I was going for a simple check up and...

We attended our second support group meeting yesterday. What a greatl bunch of people! Our state regional director for Alabama ALS is at every meeting along with a moderator. This week we had a representative from the PVA there since we have a lot of vets in our group. He was wonderful and...

Hello anyone, My world is rocked here.I am having all the negative emotions going on inside and I thought I try this forum to help me cope! I've never done this chat stuff before so I'm not so great at typing.And I no I have to reinvent some of the way I spend my time and this is a place I can...

The language of this new and latest notice, you may need to 'login' to their web site to read it, suggests that more than fifty percent of newly diagnosed ALS patients are likely eligible for DPS, whereas other notices have either not articulated an estimate or offered an estimate that implied...