newly diagnosed als

  1. H

    recently diagnosed with ALS

    Hi, my mom recently (8/2/2017) diagnosed as ALS by neurologist in Santa Clara Valley Medical Center (Jeffrey Fraser, MD) She had a first symptom of weakness on her left ankle and few times of loosing balance on April 2016. Before the symptom, she fell down from the chair while she was wiping...
    • Hjlee
    • Thread
    • afo als ankle back balance brain breathing chair diabetes diagnosis early emg fell hope mri muscle twitching neurologist newly diagnosed als problem progression second opinion symptom test tests twitching walker weakness
    • Replies: 7
    • Forum: Newly diagnosed
  2. A

    Help hubby age 31 just diagnosed .. I'm so lost

    I don't know why I'm on here. My husband was diagnosed last Tuesday and doesn't want to discuss ALS at all. I feel so lost and mostly sad. I love him so much and we have three small children ages 7,5,2. I've always been a stay at home mother but I recently starting working. To think about our...
    • Angelosangel
    • Thread
    • age als children cry diagnosed kids love newly diagnosed als sad twitching
    • Replies: 31
    • Forum: Newly diagnosed
  3. L

    Mom of newly diagnosed ALS son

    This is my first post on this forum. My son, who is 35 years old was diagnosed with ALS the end of January. It is so new and so overwhelming to all of us. I feel so helpless sometimes and when I see him my heart breaks. He has slurred speech, lot of muscle loss. He can walk some with a walker...
    • Laine Irene
    • Thread
    • als diagnosed disability heart newly diagnosed newly diagnosed als slurred speech speech walker
    • Replies: 38
    • Forum: Current caregivers
  4. D

    My b/f was just diagnosed...idk what to do

    Hello to all, My loving B/f was diagnosed last wed, with ALS. I am sick over this. He also has a fully torn rotator cuff, in one shoulder, the other shoulder has 2 tares, he has some neck issues... They just did all the blood work to rule out other things...he had a brain MRI, it was normal...
    • DebraJean14
    • Thread
    • advice als als? brain cell confused denial diagnosed insurance mri muscle newly diagnosed als pain shoulder speech stem cell stem cell treatment surgery symptom tests tongue treatment work
    • Replies: 40
    • Forum: Newly diagnosed
  5. L

    Sister Diagnosed 6/25/14

    My sister who just turned 59 yrs. old, Jill, was diagnosed with ALS on 6/25/14 by Forbes Norris Research Center in S.F., CA. They started her on Riluzole or Rilutek. They recommended she get a stomach tube put in since she had already been having trouble swallowing this whole time as well. The...
    • Leslienu
    • Thread
    • als children diagnosed family heart hope mri newly diagnosed als research rilutek riluzole second opinion speech stroke swallowing symptoms tests trouble swallowing wrong
    • Replies: 11
    • Forum: Newly diagnosed
  6. M

    These DPS notices say news is good for over 50% of the newly diagnosed ALS patients

    The language of this new and latest notice, you may need to 'login' to their web site to read it, suggests that more than fifty percent of newly diagnosed ALS patients are likely eligible for DPS, whereas other notices have either not articulated an estimate or offered an estimate that implied...
    • MuonOne
    • Thread
    • als diagnosed dps fda ice media newly diagnosed newly diagnosed als respiratory respiratory failure therapy video
    • Replies: 25
    • Forum: Research and trials
  7. K

    Re: New? Introduce Yourself - Say Hello

    Re: New? Introduce Yourself - Say Hello Hello- I am a newly diagnosed ALS patient, struggling to figure out the best way to tell my family. I am 37 years old with familial ALS. My mother lost her battle with ALS almost 20 years ago at the age of 48, her father lost his battle at the age of 38...
    • kds4
    • Thread
    • advice children diagnosed heart newly diagnosed als
    • Replies: 6
    • Forum: Current caregivers
  8. B

    Sister newly diagnosed ALS

    I'm new to this site and this forum and I'm happy to have a place to go and ask questions. I know very little about this disease, but I am learning and willing to learn more. My sister was diagnosed a few months ago. Her left leg is largely affected and she wears a brace. Her arms and right...
    • BigSista
    • Thread
    • advice als brother caregivers diagnosed family fasciculation kids life newly diagnosed newly diagnosed als progression questions young
    • Replies: 22
    • Forum: Current caregivers
  9. N

    Daughter of newly diagnosed ALS patient.

    Hi there- My mother was just diagnosed with ALS this week. She recently relocated to my state to be closer and therefore has no support system here other than me. On top of that I'm a only child (single with no kids) and her family only consists one brother that lives in a different state. I'm...
    • Nuch
    • Thread
    • als brother diagnosed diagnosis family kids newly diagnosed newly diagnosed als support
    • Replies: 13
    • Forum: Current caregivers
  10. G

    Christmas!

    Merry Christmas from a newly diagnosed ALS patient. I am unaware of the rules (if any) of my postings except not to be bad? I want to wish everyone the BEST XMAS ever! I know that since I was diagnosed at Lahey Clinic in Burlington, MA last Friday, I have had a life assessing reappraisal...
    • gewitham
    • Thread
    • als balance christmas clinic diagnosed diagnosis info life merry christmas newly diagnosed newly diagnosed als problems weakness
    • Replies: 21
    • Forum: People with ALS (PALS)
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