newbie

More newbie questions. I do not show any "visible" muscle wasting at this time, I do have definite weakness by my standard (not clinically) and it seems that any form of exertion with my hands, legs, or lungs causes the muscles to burn and ache. Is it normal to have such burning and fatigue? It...

I dont know exactly whats happening with me but anyone with any ideas please let me know. I was driving one day and my ab muscles started twitching to the point I thought I was having a heart attack but no pain. For the next month the twitching continued on and off but moved to just under the...

Hello! I'm a newbie and I've debated posting for awhile and finally... I'm giving in. You all seem super nice so I'm hoping you can help me decipher my symptoms as they're starting to freak me out. :) I can't decide if this is worth going to a doctor about or if it's all in my head. I do suffer...

I read Dusty7 post and I found his symptom recap to he an excellent resource. And I thought his advise to new people posting was well intended and well put! Especially after reading posts for the last 3 days! I'm on this site to gain information and support. I'm being "worked up" by a neuro...

Hello all - my sister was diagnosed with progressive bulbar palsy ALS on 7/2/14. She had symptoms for a long time and was given the run around by many doctors. One doctor two years ago gave her a referral to a shrink and said "go be well." This was after she tried to convince him that her...

Ok... who wants to handle Christopher? I could tear him a new opening but I'm a newbie. Somebody... have at it. :-)

This morning (Japan Time), I typed in the title "ALS and nausea" and I was taken immediately to a Sarah who had asked the same question. Unfortunately it was posted in 2011. Much like Sarah my nausea didn't start until a month after I started with rilutek. I'm not scheduled to see my doc for...

Really wish I didn't need to join this group, but was diagnosed with ALS end of November. First thing I did was to take two weeks off work and take my three year old grandson to Disneyland and then up the coast to visit my brother. Now it's time for me to research what I can do, and these...

Hi all. I'm new to this whole thing, and I'm looking to see if anyone can give me some insight as far as what I can expect in the days/weeks/months to come. My dad was diagnosed the end of May of this year, and since his diagnosis, this terrible disease has progressed quite rapidly with him...

Hi all. I'm new to the forums and thought I should introduce myself. My husband was recently diagnosed (sort of...long story) and I'm just having a really hard time with the whole thing. He's 33, I'm 31, and we have a very active 19 month old daughter. Thankfully, his progression has been...