Hello Again,
Can someone point me to a thread/post/something with a description of the various acronyms and terminology used here that may be unfamiliar to newbies? Examples: PEG, trilogy, pvs, and many more.
Regards,
Ed
Hello, All.
I was diagnosed with ALS last month, but I had a couple of very public falls before that and another one a week ago at a crowded restaurant. In that one, a "helpful" person pulled me so far forward (getting up from a booth), that I fell onto my knees -- and once I'm on the ground...
Hello everyone, I too have read the stickies and have a question about my symptoms.
I must say that muscular dystrophy runs strongly in my family and that while I, at 33, am still fairly young to have onset symptoms, obviously we are not ruling this out. I am awaiting gene testing for this...
Good morning, all!
Aside from a quick "Happy Birthday" message to Max a few months ago, the last post I recall is from when I received my "working diagnosis" of PLS in March of 2015. I have had continued follow-up with the Director of our local ALSA Clinic, including a repeat EMG in December...
I know, as a Newbie, it's really cheeky of me to make a suggestion, but...
A "Go To Top" button at the end of each page would make life easier for PALS, especially for us eye gazers & those with limited hand function.
Easy for me to suggest, but admittedly I've no idea how much work is...
Hello! I've been following the forum for a couple of months now and thought it may be time to join in with you. I have grown such a great respect for the individuals in these groups and greatly admire that many of you are battling probably the worst disease conceivable and yet you respond with...
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Hi
I am a newbie.....any advise you can give me? Anything I can about my voice. I have no voice! I am going to a speech therapist! I have an app on my phone. But mostly I carry a pad and pen! Bobbie2
well, i have been holding back before getting on line about all this. i don't use the computor much and one finger typing sucks. i have been diagnosed w/ als on 2/13/15 friday the13th.
i am a combat viet nam purple heart veteran USMC. my whole life i have been super active super on the go all...
Hi all! I went through some older threads looking for comments about balance (or lack there of) issues. It appeared most balance problems were more minor than mine and most were ALS related.
As of yet, I've been diagnosed with PLS. However, I have lost my balance COMPLETELY. I mean I have...