newbie

  1. S

    Im really Worried!

    Hello im 2,3 im a newbie to this forum but please hear me out to help get rid of my anxiety since i overthink all the time, So lately I've been have muscle twitches and jerks all over my body mostly when resting do the jerks happen and i feel my muscles spasm or twitch all over. But recently...
  2. J

    Newbie with Rilutek

    yes, you read it right! its app 3,5 years after onset and 10 months after diagnose. my ALSFRS-R is 39, neuro count in on 29.6. he was angry with me after saying that i never used rilutek cause i didnt believed dx. all i got i have in my draw. now is 18th day of using rilutek. after 15 days i...
  3. Tippenme

    Newbie--need help decoding respiratory numbers...

    Hello to all: I am a newbie and was diagnosed after a year of symptoms in June of 2018 at OHSU here in Portland. (I had previously gone to Mayo in Rochester and was badly misdiagnosed...a story for another time perhaps.) I have been reading through the forums and am truly blown away by the...
  4. P

    Newbie

    Hello Everyone! This is my first post so bare with me. I'll spare everyone the details that took me from Aug. 2016 to now but as of now my Neurologist believes I may have PLS. I have had one MRI, 2 EMG's, several blood test and my next visit with her is Sept. 25th. I am seeing another...
  5. B

    newbie and wife hello

    I was diagnosed 2 days ago after a long year of tests and many different answers to my problem. of course I am scared and have so many questions. my wife will be doing the typing as I am already having much difficulty getting my hands to do what I want. what kind medicines are you on? they are...
  6. 2

    New and need guidance

    My dad was diagnosed with PLS a couple of years ago. For reasons I don't need to go into, his current living situation is going to change very soon, and my sister and I intend to have him live in our homes on a shared basis. I live 5 hours away from my dad and my sister's family, so...
  7. A

    New family member

    Hello! My mom, 75, was just diagnosed with ALS. She’s had symptoms since the spring (vocal cord paralysis, difficulty swallowing, difficulty walking) and finally had the nerve conduction test and more EMG/other tests inpatient in a hospital 2 weeks ago, and now has an answer as to why she’s...
  8. S

    Ruling out ALS

    Hi everyone, another newbie reaching out for answers no one can really give. I'm Sam, a 41 year old single mom of 3 kids. My journey started just 11 months ago and I'm no where closer to coming to an answer or diagnosis. It started instantly, with incredible pain in my left shoulder and arm...
  9. SyncOrSwym

    Confused: Hospice vs. Noninvasive Ventilation?

    Color me confused.:?: I finally got together with the VA last week for a whirlwind of meetings. One result was to be scheduled next week for a breathing test in Seattle. A second result was a phone message from someone at VA for me to come in for a fitting for CPAP(?). A third result was...
  10. S

    Newbie here

    Hi! I'm Sophie and I have fibromyalgia and benign fasciculation syndrome. I also have finger muscle weakness due to an unknown cause, (emg next week.) I also have generalizrd anxiety disorder which disturbs my life quite a lot. I thought that since I have given many tips how to reduce anxiety, I...
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