new here

  1. B

    Fears of Twitching and Weakness

    Hi, I am new here although I have been reading some forums for a couple of weeks. Just wanted to get your opinion on my symptoms: Started with a chills sensation that lasted three days along with pins and needles on my head in May but stopped after that. This followed with some hard headaches...
  2. L

    New here

    My PALS was diagnosed in May with ALS and FTD. Our family I had just been trying to digest the news. We’ve known something was wrong since the beginning of last year. The FTD started first and he didn’t get any physical symptoms until around Christmas when he started choking on liquids every...
  3. F

    Als Excessive and constant crying

    Hello. I am new here. Ah by the way ı do not know whether this kind of post has been posted or not. Forgive me. My mother was diagnosed with Als 1.5 years ago. We have a big problem. A problem that my mother cries constantly with a different tone in her voice. By the way this disease affects...
  4. J

    New Here

    Hi guys, I'm having a tough time. Not yet diagnosed with ALS. I have some habit of being somatic, but don't think this time I am. My symptoms seem to have started all within the past month and honestly I don't think I have a single area not affected. First concerning symptoms was...
  5. L

    Hi Everyone- New here

    Hello, My 76 year old father was diagnosed 3/2/17 with bulbar onset ALS. I stumble upon this forum and decided to introduce myself. My father's symptoms began in November and were not immediately noticeable to others. By January we could all tell that something was very wrong. in February he...
  6. A

    Annie

    Hi. I am new here. Can anyone tell me if they have shared my experience please? I am 50. My neurologist has confirmed that I have dysarthria (for about 6 months), tongue fasciculation and a weak gag reflex. I also have stiff legs and neck and fatigue. MRI and EMG did not show anything, and all...
  7. T

    New here, hello.

    Hello, my name is Amanda, i'm 26 years old and live in sunny San Diego! I'm here because my 72 year old grandma was diagnosed with ALS on January 23rd 2017 and got a second opinion confirming that diagnosis February 10th. I just wanted to introduce myself to this very special community of...
  8. J

    Questions about NIV vs. Trach (and vent?)

    Hi everyone! I'm new here, but my dad was diagnosed with ALS in March '16, and had been showing symptoms for maybe six months prior. His progression seems to be moving pretty fast, as he is using the bipap and sip 'n puff now, and has some movement left in his lower left arm and head/neck, but...
  9. T

    Questions.

    Hiya, new here. I'm only 22 and petrified that I have ALS. So I have a few questions: -does weakness ALWAYS come before atrophy? - does weakness ALWAYS come before muscle twitching? -would the muscle twitching be persistent and in one place? I'm probably being irrational but have always...
  10. T

    Twitching and Carpal Tunnel?!

    Hi! I'm new here. 40 year old female. I started with right index finger twitching about 3 months ago. I let it go until I googled twitching, and of course ALS comes up. So now I freak out, start having panic attacks and twitching all over my body. Schedule appointment with neurologist. She...
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