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  1. blitzc

    Recent Diagnosis

    Hello Everyone! My name is Cathy and am new here and trying posting for only the second time. Not so certain about how the rules and regulations work and feeling a bit apprehensive. What do I say to all of you? I am 53 years old and live in Ohio with my husband. We recently became empty...
  2. T

    Introduction: Dad Diagnosed with ALS

    Hi, I'm new here, so I thought I should introduce myself. After going from doctor to doctor for over a year, my Dad was diagnosed with ALS at the end of Dec. 2107. (I would say his symptoms started in about July 2016.) From what I'm reading it seems to be limb onset, with the greatest affect...
  3. F

    Hello friends, and also, tube burping?

    hi all! :) As I've said in a couple prior posts, I'm new here, and new to ALS forums and discussions in general. It's been such a revelation to me (and at times made me emotional) to read many of your posts - I can relate. One thing I have never heard of is "tube burping", I saw it in a closed...
  4. S

    EMG results

    Hi - new here. Had an emg recently as part of a neuro workup including mri and evoked potentials. I’ve had fasciculations quite widespread for 2 years now. These were seen on the EMG and recorded at 2points. Question I have - forgot and didn’t ask the neuro this and apologies as I don’t think...
  5. B

    Visiting my sister in last stages

    Hi. I am new here. My sister was diagnosed in 2011. She has been in a nursing home for the last three years. We live 6,000 miles apart. The last time I was able to visit was four years (and one college kid expenses) ago. The nursing home is very good and paid for by her disability pension...
  6. 7

    speed at which my symptoms “seem” to have onset

    Hi, I am new here and must say I respect those dealing with ALS....some of the toughest people on earth. I am not looking create an overblown post here, but I just got refered to a neuro and kinda looking for what to expect...reactions to my symptoms. My blood work has shown an elevated CPK...
  7. R

    Muscle Weakness, Spasms and Chronic Fasiculations

    I am new here and am FINALLY seeing a neurologist, but wanted to get a feel for the experience of others. After [failed] surgery to repair my left ankle joint, I knew they had damaged the nerves in my foot and ankle, so any problems in that leg was always seen as a result of the surgical...
  8. V

    Familial ALS ruled out?

    Hello, I am new here, so please bear with me if I break any rules, and feel free to delete this thread. My grandfather passsed away aged ~65 from ALS after having been ill for 4 years. His brother still suffers from ALS, but he was diagnosed much earlier, almost 20 years ago. His illness moves...
  9. N

    PAIN and ALS?

    Hi I'm brand spanking new here and I just wanted to know... As ALS progresses and you start to have muscle/ nerve failure, is it painful as the muscles weakens? I mean when you try to move a dying muscle or limb does it cause pain? Does it feel like it is weak and the muscle is straining under...
  10. L

    Does my mom have ALS?

    Hi ! I am new here and I wanted to know if my mom has ALS... Here is the history: My mom frequently woke up choking...some time passed and it never happens again. well, 1 year, I think, later, she starts to stumble in the streets with her left foot. later she started to limp too...she had...
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