new diagnosis

Do you know any good remedies to control or reduce als muscle fasciculations? I'm asking because I've been dealing with muscle spasms/fasciculations for some years but last month I started having them in a different way. Now they are happening in my legs and they are non-stop and no more...

Hello all, I've been lurking for about 6 months, prior to and after my diagnosis. I was diagnosed with ALS in February 2012. Had very mild symptoms last summer and got to a neurologist in October of 2011. Many tests later (as we all know - things need to get worse to get a diagnosis), every...

Hello and thank you to all the forum members - some of you make me laugh and sometimes I cry when I get on here, but I appreciate all the valuable information I have gotten from this site. I read it daily for a couple of months before I joined, and have posted a few times, but here it is two...

Of all the things I’ve lost, I miss my mind the most. This week a letter arrived from the Neurologist who last month uttered the incongruous phrase, “It’s too soon to know”. Coming on the tail end of a taxing (but exhilarating!) 30 hour sojourn his letter sucked my remaining breath away. The...

A friend of mine is definitely risk-inclined. To look into his eyes, the bright centre of his vaguely unkempt person, is to peer over the rim of the cliffs and cascades against which he continually pits his mettle. A climber, adventurer, horseman; he's the fellow who gets a mechanic mate to cut...

I was just diagnosed with PLS in 9/2009 and was trying to get information from the internet about it to see what I'm up against and what I need to do to FIGHT the inevitable. The problem is . . . all of the sites I've found, until now, tell me the FACTS and not the personal problems that people...

As you all know, I have a new diagnosis of ALS from a neuro in St. Louis. I am likely going to be moving to either York NE or Lincoln NE sometime this fall or next spring. Where, probably in the midwest would be a good place to go for a second opinion?

I'm still in shock, but my 68-year-old father was diagnosed today after what seems to be a rapid decline. He has difficultly swallowing and speaking and has little control of his right arm and leg. 3 months ago, he was walking and moving fine. I'm not sure where to go for help. My mother is...

Check this out...I can't explain it. I was diagnosed with ALS May 1st, which just happens to be ALS awareness month. My birthday is also in May. I start searching the internet for info on the disease, and I come across this wonderful website. O.k., not so odd. Then this started. My wife...

Hello, I don't have ALS but my best friend was just diagnosed. Aside from falling apart and feeling unbelievably helpless. I want to know what to do to help, I want to be there for her and for her husband and two young children. She has bulbar onset (yes, I have learned more than I ever...