new diagnosis

  1. N

    Question

    Do you know any good remedies to control or reduce als muscle fasciculations? I'm asking because I've been dealing with muscle spasms/fasciculations for some years but last month I started having them in a different way. Now they are happening in my legs and they are non-stop and no more...
  2. M

    New Member

    Hello all, I've been lurking for about 6 months, prior to and after my diagnosis. I was diagnosed with ALS in February 2012. Had very mild symptoms last summer and got to a neurologist in October of 2011. Many tests later (as we all know - things need to get worse to get a diagnosis), every...
    • mich5
    • Thread
    • als clinic diagnosed diagnosis emg helpful info neurologist new diagnosis new member newbie questions symptoms technology tests website
    • Replies: 18
    • Forum: New members
  3. AKjo

    An Overdue Introduction

    Hello and thank you to all the forum members - some of you make me laugh and sometimes I cry when I get on here, but I appreciate all the valuable information I have gotten from this site. I read it daily for a couple of months before I joined, and have posted a few times, but here it is two...
    • AKjo
    • Thread
    • afo back balance brain children clinic cry dad diagnosis emg fasciculation foot foot drop go away hours information introduction medical mri neurologist new diagnosis pain problem rilutek second opinion story surgery symptoms tests umn weakness work
    • Replies: 7
    • Forum: General discussion about ALS/MND
  4. arkallen

    All in the Mind ...?

    Of all the things I’ve lost, I miss my mind the most. This week a letter arrived from the Neurologist who last month uttered the incongruous phrase, “It’s too soon to know”. Coming on the tail end of a taxing (but exhilarating!) 30 hour sojourn his letter sucked my remaining breath away. The...
    • arkallen
    • Thread
    • advice anxiety back bed clinic denial depression diagnosis family fear financial foot free friend health hours medical medicine neurologist neurology new diagnosis night onset pressure problem problems relative second opinion secure sleep support symptoms treatment trip video wheelchair work wrong
    • Replies: 20
    • Forum: General discussion about ALS/MND
  5. arkallen

    Edgeworking

    A friend of mine is definitely risk-inclined. To look into his eyes, the bright centre of his vaguely unkempt person, is to peer over the rim of the cliffs and cascades against which he continually pits his mettle. A climber, adventurer, horseman; he's the fellow who gets a mechanic mate to cut...
    • arkallen
    • Thread
    • back decline depression diagnosed diagnosis equipment eyes falling fear foot free friend grinder life love medical neurologist new diagnosis power power wheelchair preparation psychology questions risk trip unknown wheelchair wrong
    • Replies: 12
    • Forum: Off topic everything
  6. V

    New diagnosis and needing more info.

    I was just diagnosed with PLS in 9/2009 and was trying to get information from the internet about it to see what I'm up against and what I need to do to FIGHT the inevitable. The problem is . . . all of the sites I've found, until now, tell me the FACTS and not the personal problems that people...
  7. pvale

    2nd Opinion?

    As you all know, I have a new diagnosis of ALS from a neuro in St. Louis. I am likely going to be moving to either York NE or Lincoln NE sometime this fall or next spring. Where, probably in the midwest would be a good place to go for a second opinion?
  8. L

    New diagnosis; where to turn?

    I'm still in shock, but my 68-year-old father was diagnosed today after what seems to be a rapid decline. He has difficultly swallowing and speaking and has little control of his right arm and leg. 3 months ago, he was walking and moving fine. I'm not sure where to go for help. My mother is...
    • lisaann1170
    • Thread
    • advice anger arm dad decline diagnosed diagnosis father fear hours medical new diagnosis pain reading support swallowing
    • Replies: 5
    • Forum: Current caregivers
  9. S

    This is so wierd !

    Check this out...I can't explain it. I was diagnosed with ALS May 1st, which just happens to be ALS awareness month. My birthday is also in May. I start searching the internet for info on the disease, and I come across this wonderful website. O.k., not so odd. Then this started. My wife...
    • sigma35
    • Thread
    • als als awareness awareness back data diagnosed diagnosis drugs info keyboard new diagnosis story website work wrong
    • Replies: 5
    • Forum: People with ALS (PALS)
  10. M

    A New Diagnosis

    Hello, I don't have ALS but my best friend was just diagnosed. Aside from falling apart and feeling unbelievably helpless. I want to know what to do to help, I want to be there for her and for her husband and two young children. She has bulbar onset (yes, I have learned more than I ever...
    • mmob
    • Thread
    • als bulbar bulbar onset children dementia diagnosed diagnosis falling friend new diagnosis onset slurred speech speech symptoms young
    • Replies: 8
    • Forum: General discussion about ALS/MND
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