new diagnosis

  1. S

    Heartfelt thanks and request please.

    Hi. Firstly thanks to those who gave advice to me 9 months ago at the start of diagnosis. Igelb, Atsugi and Tillie particularly your compassion and knowledge helped no end. I was initially diagnosed with BFS but after 3 clean Emg's I have had a setback with a fourth. Denevrvation was found in...
    • Sidney
    • Thread
    • advice als atrophy back bfs clean emg diagnosed diagnosis emg foot grief new diagnosis night pain
    • Replies: 12
    • Forum: Could this be ALS?
  2. P

    after parent diagnosis...

    Hey, As I wrote in the "New diagnosis" forum, my father was diagnosed a little over a week ago. Now, I have a question which is a bit crazy, but was wondering if someone could answer for me... Ever since my father's diagnosis I have been feeling like I have similar symptoms. I understand it is...
  3. konagirl

    2 weeks in

    Tomorrow will mark 2 weeks since my husband received his official ALS diagnosis. I feel like I have known for a while, but it sure didn't soften the blow. All of this has seemed to happen very fast. Our first clue that something was wrong was last September, 2015, while he was wakeboarding he...
    • konagirl
    • Thread
    • als back clinical cure diagnosed diagnosis father fingers heart hope kids medicine mri neurologist new diagnosis pain pls problem running surgery weakness wheelchair wrong
    • Replies: 15
    • Forum: Newly diagnosed
  4. T

    New diagnosis and bulbar issues

    I was diagnosed in December with ALS. My doctor describes my form as atypical and slowly progressing. I've had full body fasciculations for over 2 years, but speech problems started slowly last January. Recently, my voice has gotten progressively worse. I also cough a lot, particularly when...
    • Twitcherama
    • Thread
    • als bulbar choking coughing diagnosed diagnosis eating fasciculations issues new diagnosis only symptom problems speech swallowing symptom treatments voice weakness
    • Replies: 19
    • Forum: Newly diagnosed
  5. H

    New diagnosis

    My sister was just diagnosed with ALS (bulbar, I believe), and she is already having difficulty speaking and swallowing so it can be hard to understand her, and she runs the risk of aspiration when she eats or drinks. She is also tripping and falling frequently, and she doesn't seem to be able...
    • Hewitt
    • Thread
    • als bulbar decline diagnosed diagnosis falling family insomnia new diagnosis night risk sleep story swallowing worry
    • Replies: 11
    • Forum: Newly diagnosed
  6. M

    Where to start?

    Hello, My husband (34) was diagnosed two weeks ago. While I have been watching the progression over the last 4 months and have been able to somewhat prepare myself, I too am at a loss. I have been with this man since we were in high school, we have a 5 year old little girl, and are in...
    • madam419
    • Thread
    • als back breathing denial diagnosed diagnosis emg family foot hearing hours mri muscle muscle weakness neurologist new diagnosis problems progression swallowing testing tests weakness
    • Replies: 13
    • Forum: Newly diagnosed
  7. M

    New diagnosis

    A relative has just been diagnosed with als and I am devastated. I don't know how I am going to be able to cope. Is there anyone in the Manchester area who I can talk to? Please help
  8. L

    Familial ALS and Onset Type

    Hi, I have been a member on the forum for many years because I have a dear friend with ALS and have found some helpful information here. She is actually doing fairly well and we are blessed to have her in our lives 15 years after her diagnosis. I am back with a question about another loved...
    • Le Le
    • Thread
    • als back bulbar bulbar onset dad diagnosed diagnosis fals familial familial als family friend genetic helpful information new diagnosis onset sporadic
    • Replies: 13
    • Forum: Familial ALS (FALS)
  9. H

    Recently diagnosed and so many questions....

    Hello all - I found this forum a month or so ago and held back on posting since I just don't know what to say really. I was diagnosed late November and felt so alone for so long. My appointment was late in the day and though I was at a great facility, all support folks were gone and I had no...
    • Hope4Me
    • Thread
    • als back baclofen breathing candida cost diagnosed diagnosis exhaustion family fatigue hope ideas new diagnosis pain questions respiratory riluzole scared spasms speech story stress support surgery twitching weakness
    • Replies: 49
    • Forum: Newly diagnosed
  10. D

    New diagnosis

    I noticed a weak left hand in fall 2013. I saw a neurologist at UT Medicine San Antonio in November and was diagnosed with multifocal motor neuropathy. I started iv immunoglobulin in February. I continued with ivig until June. It was not working. My neurologist said she was leaning toward a...
    • david108tx
    • Thread
    • als diagnosed diagnosis hope immunoglobulin info ivig medicine motor neuron disease neurologist new diagnosis paralyzed professor symptoms wanted wrist
    • Replies: 10
    • Forum: Newly diagnosed
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