new diagnosis

  1. konagirl

    2 weeks in

    Tomorrow will mark 2 weeks since my husband received his official ALS diagnosis. I feel like I have known for a while, but it sure didn't soften the blow. All of this has seemed to happen very fast. Our first clue that something was wrong was last September, 2015, while he was wakeboarding he...
  2. T

    New diagnosis and bulbar issues

    I was diagnosed in December with ALS. My doctor describes my form as atypical and slowly progressing. I've had full body fasciculations for over 2 years, but speech problems started slowly last January. Recently, my voice has gotten progressively worse. I also cough a lot, particularly when...
  3. H

    New diagnosis

    My sister was just diagnosed with ALS (bulbar, I believe), and she is already having difficulty speaking and swallowing so it can be hard to understand her, and she runs the risk of aspiration when she eats or drinks. She is also tripping and falling frequently, and she doesn't seem to be able...
  4. M

    Where to start?

    Hello, My husband (34) was diagnosed two weeks ago. While I have been watching the progression over the last 4 months and have been able to somewhat prepare myself, I too am at a loss. I have been with this man since we were in high school, we have a 5 year old little girl, and are in...
  5. M

    New diagnosis

    A relative has just been diagnosed with als and I am devastated. I don't know how I am going to be able to cope. Is there anyone in the Manchester area who I can talk to? Please help
  6. L

    Familial ALS and Onset Type

    Hi, I have been a member on the forum for many years because I have a dear friend with ALS and have found some helpful information here. She is actually doing fairly well and we are blessed to have her in our lives 15 years after her diagnosis. I am back with a question about another loved...
  7. H

    Recently diagnosed and so many questions....

    Hello all - I found this forum a month or so ago and held back on posting since I just don't know what to say really. I was diagnosed late November and felt so alone for so long. My appointment was late in the day and though I was at a great facility, all support folks were gone and I had no...
  8. D

    New diagnosis

    I noticed a weak left hand in fall 2013. I saw a neurologist at UT Medicine San Antonio in November and was diagnosed with multifocal motor neuropathy. I started iv immunoglobulin in February. I continued with ivig until June. It was not working. My neurologist said she was leaning toward a...
  9. A

    New Diagnosis, Trying to stay positive

    I am a 56 year old woman who received verification of ALS diagnosis on December 9, 2013. It's been devastating for my entire family including my husband, two wonderful children, parents, and extended family. I'm fortunate to have all this support and that of many friends as well. I first...
  10. Txgirl

    ALS Epidemic?

    It seems everywhere I turn there is a new diagnosis of ALS. I have had so many people including friends & family members that know or have known someone with ALS. I saw another football player on the news tonight that has ALS. My son came home this evening & told me there is a guy in his class...
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