new diagnosis

I have been waiting for our official diagnosis from and ALS specialist/neurologist to post and we got it last Thursday so here I am. My mom was her normal awesome self in April this year. In May we noticed she was slurring her words and she had a couple of falls while cleaning the house. In...

Dear Forum, Thanks to all of you who take time to read and respond. Like many , i seek advice from others on my case. I have read the stickies before joining and posting. I am 45, male. A year and a half ago i observed fasciculations in my left calf. They have been since constant. They are...

Hello, I am writing on behalf of a friend of mine who was diagnosed first with Stiff Person Symdrome (1/2018) and now this week has been given a new diagnosis of ALS. Symptoms began in August of 2017 and have been swift in progression. Frequent falls, cramps at night (or sensation of needing to...

New friends, My name is Jessi and my mother in law, Eileen, was just diagnosed with ALS about 3 weeks ago. She is a 2 time breast cancer survivor so they are unsure of whether or not her ALS is related to the radiation she underwent as a part of her cancer treatment or not. She lost total use...

Hello, I was diagnosed on Aug 24,2017. My condition is progressing quickly. My legs are getting weaker. I went from walking two months ago to barely walking and using a wheel chair to be mobile. This some scary stuff happening in such a short amount of time. I am taking riluzole for now. Have...

Thank you for being here. We were Diagnosed Christmas 2015. We are new to all of this. He has a hard time coping due to living a productive life before. I am having a hard time coping, since he is not able to cope. Watching him Deteriorate is the worse thing of this nasty disease. I need coping...

Hi Everybody, My name is Jennifer and my 57 year old husband was just preliminarily diagnosed with Bulbar Onset ALS. We are completely in shock as his first symptoms (that he/we can recall) started in early June 2016 (maybe late May). He began with slurred speech, emotional lability and his...

Hi my name isKristen and my dad was diagnosed with bulbar ALS on September 7th of this year. It's a new diagnosis for our family as we had previously thought he had myasthenia gravis but his symptoms have been getting progressively worse. Both my sister and I are speech therapists and I...

Hi. Firstly thanks to those who gave advice to me 9 months ago at the start of diagnosis. Igelb, Atsugi and Tillie particularly your compassion and knowledge helped no end. I was initially diagnosed with BFS but after 3 clean Emg's I have had a setback with a fourth. Denevrvation was found in...

Hey, As I wrote in the "New diagnosis" forum, my father was diagnosed a little over a week ago. Now, I have a question which is a bit crazy, but was wondering if someone could answer for me... Ever since my father's diagnosis I have been feeling like I have similar symptoms. I understand it is...