new diagnosis

  1. JJJeremy

    New Diagnosis of ALS and curious about some symptoms

    Hi Everyone, I would be grateful for your thoughts on on some symptoms. Long story short, Over the course of the past 6 weeks I was seen at Columbia's ALS center and received a second opinion at the Healy Center at Mass General. The consensus of the doctors at both facilities was to give me a...
  2. A

    Introducing Myself - And Question about Guilt Over Delayed Diagnosis

    I’m new to this forum as my best friend was just diagnosed a few days ago. I don’t even know if I could technically be considered a caregiver now as he is still very independent. But I am committed to helping him through this all the way, and have already started helping him with research...
  3. K

    A question about a new diagnosis

    I have been waiting for our official diagnosis from and ALS specialist/neurologist to post and we got it last Thursday so here I am. My mom was her normal awesome self in April this year. In May we noticed she was slurring her words and she had a couple of falls while cleaning the house. In...
    • Kmbertrand
    • Thread
    • als bipap caregiver clinic diagnosis eating emg neurologist new diagnosis night progression rapid progression stroke timeline walker weakness wheelchair
    • Replies: 8
    • Forum: Newly diagnosed
  4. A

    New to forum - seeking advice on symptoms

    Dear Forum, Thanks to all of you who take time to read and respond. Like many , i seek advice from others on my case. I have read the stickies before joining and posting. I am 45, male. A year and a half ago i observed fasciculations in my left calf. They have been since constant. They are...
    • Adam123
    • Thread
    • advice anxiety back battery clinical cramps diagnosis early emg fasciculations fingers mri muscles new diagnosis questions symptom symptoms tests twitching vitamin d weakness
    • Replies: 7
    • Forum: Could this be ALS?
  5. A

    High Anti-GAD numbers in ALS?

    Hello, I am writing on behalf of a friend of mine who was diagnosed first with Stiff Person Symdrome (1/2018) and now this week has been given a new diagnosis of ALS. Symptoms began in August of 2017 and have been swift in progression. Frequent falls, cramps at night (or sensation of needing to...
    • Annaeliza
    • Thread
    • als als? autoimmune cramps diagnosed diagnosis friend new diagnosis night progression symptoms test twitching walker wheelchair
    • Replies: 15
    • Forum: Could this be ALS?
  6. J

    New Diagnosis

    New friends, My name is Jessi and my mother in law, Eileen, was just diagnosed with ALS about 3 weeks ago. She is a 2 time breast cancer survivor so they are unsure of whether or not her ALS is related to the radiation she underwent as a part of her cancer treatment or not. She lost total use...
    • jessiseppathompson
    • Thread
    • als arm caregiver children decline diagnosed diagnosis eating falling life meds new diagnosis progression questions shoulder treatment trip unsure walker wrong
    • Replies: 2
    • Forum: Newly diagnosed
  7. P

    New Diagnosis

    Hello, I was diagnosed on Aug 24,2017. My condition is progressing quickly. My legs are getting weaker. I went from walking two months ago to barely walking and using a wheel chair to be mobile. This some scary stuff happening in such a short amount of time. I am taking riluzole for now. Have...
    • PaulGrewe
    • Thread
    • als chair clinic diagnosed diagnosis hope new diagnosis riluzole scared
    • Replies: 11
    • Forum: Newly diagnosed
  8. L

    Newly Diagnosed Husband

    Thank you for being here. We were Diagnosed Christmas 2015. We are new to all of this. He has a hard time coping due to living a productive life before. I am having a hard time coping, since he is not able to cope. Watching him Deteriorate is the worse thing of this nasty disease. I need coping...
    • LilBit
    • Thread
    • advice als als? christmas coping diagnosed diagnosis husband life new diagnosis newly diagnosed reading
    • Replies: 16
    • Forum: Newly diagnosed
  9. J

    New diagnosis.. In shock

    Hi Everybody, My name is Jennifer and my 57 year old husband was just preliminarily diagnosed with Bulbar Onset ALS. We are completely in shock as his first symptoms (that he/we can recall) started in early June 2016 (maybe late May). He began with slurred speech, emotional lability and his...
    • Jennanne
    • Thread
    • advice age als back brain bulbar bulbar onset clinic diagnosed diagnosis early emg emotional lability kids mri neurologist new diagnosis onset respiratory second opinion slurred speech speech stroke swallowing symptoms
    • Replies: 12
    • Forum: Newly diagnosed
  10. K

    New CAL

    Hi my name isKristen and my dad was diagnosed with bulbar ALS on September 7th of this year. It's a new diagnosis for our family as we had previously thought he had myasthenia gravis but his symptoms have been getting progressively worse. Both my sister and I are speech therapists and I...
    • Kristy84slp
    • Thread
    • als brain brain injury bulbar bulbar als caregiver communication dad diagnosed diagnosis family myasthenia gravis new diagnosis speech stroke swallowing symptoms
    • Replies: 11
    • Forum: Current caregivers
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