never give up

I lost my Dad, Jeff Long (who was active on this site), in October of 2015 to ALS. I am currently looking at the Infant Feeding Characteristics of Patients with ALS with the University of North Carolina at Chapel Hill. The information is listed on the National ALS Registry website...

Hello all and thank you for the support you provide. First off a little background on me. I am a male who is about to turn 30. I was a soldier for 8 years. I did deploy overseas to Afghanistan in 08-09. Three weeks after I returned home I found out I was to become a CALS. My father fought...

I wanted to share this to inform you that there are things far worse than ALS alone. I was diagnosed two years ago; I am 31 years old now. Currently, I cannot use either my arms or my legs in a useful way, controlling my pc using a head tracker. I met my wife ten years ago when we were both...

We need help, answers, or suggestions! Mom is having difficulty at night when we get ready for bed, she is fine during the day and does not require a lot of suction on most days and even right before bed she is fine. However as soon as we lay day she is wanting to be suctioned every 2 to 5...

Hello everyone, my name is George, I'm 19 years old and I am from Greece. First of all I want to apologise for my bad english..:?: A year ago, my father (63 years old) went to retirement but this last year he was feeling his hands weak, especially his right hand that he was using more at his...

for my back and hands, hoping the problems that I've been having with them wasn't ALS related, but something that would eventually go away. No such luck though. It is from the ALS.:( The doctor didn't even bother with a x-ray, said that all the symptoms are ALS symptoms & no sense in subjecting...

My husband was diagnosed with ALS in January 2007. our oldest child was a senior, and when June came around I felt sad that the rest of the kids would not have their daddy at their graduation. fast forward to 2014--my baby is graduating next weekend and his daddy WILL be there! I guess you...

Many people feel there isn't any good medicine for ALS. But, they are wrong. There is one remedy that is extremely potent. That is prayer. Will it necessarily produce a cure or miracle? It's possible as anything is with God. But, that's not the point. Praying will help you and your loved one's...

I used to run afternoons behind the local elementary school on their track after work. In the evenings I would then do aerobics or yoga. But after being diagnosed with PLS and having falls, weakness in certain areas and having to go from stumbling to a cane to a walker in just a matter of a...

I was told I had Drop foot only thing what is it? Everyone, meaning the doctors I would be sent to would see me walk into the room would say when they first see me, "you have drop foot?" but never explain to me what it was? I try looking it up more then twice and still have little...