neuromuscular disorder

  1. R

    Just Need Relief

    Hi! I honestly was very hesitant about making an account on here to just to post to this forum. I was diagnosed with generalized anxiety disorder, and I am well aware that what I am experiencing could certainly just be because of that. However, over the last few days, the thought of ALS or any...
  2. S

    New Member / Awaiting Diagnosis / MIP Questions

    Let me begin by saying how much I respect and empathize with this horrible battle that each of you are going through. None of you deserves it, and I know there is little I can say that will help, but my heart is with each of you, for whatever it is worth. I have not been diagnosed, but it is...
  3. S

    12/3/13 The day dad was diagnosed

    Over the last 10-15 years dad has faced many health issues such as severe arthrihtis problems, 2 disks removed in the lower back with fusion, carpral tunnel surgery on both wrists, and rotator cuff surgery to name a few. Within the last 3 years or so there have been more issues. He started...
  4. W

    Myasthenia Gravis – Natural Herbs Clinic

    What is Myasthenia Gravis? Myasthenia Gravis is not an ordinary disease it is a neuromuscular disorder which involves the muscles and nerves controlling them. This is a chronic autoimmune disorder in which the immune system mistakenly attacks the muscles and nerves that help to control their...
  5. G

    New Book from author diagnosed with ALS

    I found the following story on the NPR iPad App: Author Interview: Susan Spencer-Wendel, Author Of 'Until I Say Goodbye' : NPR Living A Life Of Joy 'Until I Say Good-Bye' by NPR Staff NPR - March 9, 2013 Susan Spencer-Wendel knows how to spend a year. She left her job as an award-winning...
  6. L

    Neuromuscular disorder as a presenting feature of coeliac disease

    Here's another treatable syndrome to consider if you've got twitches, progressive weakness, swallowing problems, sensory issues, etc. Case #6 was especially interesting to me. From what I've just read on Wikipedia, coeliac disease itself is rare, but certainly more prevalent than MND, and it...
  7. B

    Nervous About Posting Here

    For the last few weeks I have been stalking the forums here and I am a bit nervous to be posting at all. First I am the nervous nelly wife - don't be too hard on me. ;) Around Thanksgiving my husband J came to me about having pain, numbness, and tingling in his left arm. I figured he had done...
  8. K

    I am going too!

    Hello all! I have been reading the forum and decided to join because I feel the inevitable is about to happen. My dad started with an unusual pain in his shoulder in February and now has atrophy in both arms, can no longer write, has lost 60 pounds, and is falling all of the time. His most...
  9. B

    runny nose, nasal congestion

    My sister has a runny nose and nasal congestion (more on one side) for a few mos now. We have been to her primary doc, who sent us to ENT. ENT saying this is a part of her neuromuscular disorder, talk to neuro. He gave Nasonex spray, which is not helping. When I call our neuro, he is telling to...
  10. S

    new gene research

    ScienceDaily (Sep. 9, 2009) — Michigan Technological University researchers have linked three genes to the most common type of amyotrophic lateral sclerosis (ALS), generally known as Lou Gehrig’s disease. Professor Shuanglin Zhang leads the team of mathematicians that isolated the genes from...
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