neurology

  1. BlsdMama

    Glycine Receptor Antibody?

    Has anyone else been tested for this? I was dx'd by the U of Iowa Neurology around April/May-ish officially with PLS, moved to ALS Clinic. Asked for a second opinion in June. Was seen by Mayo in Rochester in July. The PLS diagnosis was affirmed. I was tested for Stiff Person Syndrome (GAD...
  2. L

    Calf atrophy

    So, I am not here for twitching. I never suspected ALS until my PT mentioned needing to see neurology/ortho for a muscle biopsy. I tore my gastrocnemius in May. It is not healing. Not responding to PT. I have lost an inch of muscle mass in the last 5 weeks in that calf. I was told...
  3. V

    Little info about pyrimethamine.

    Pyrimethamine significantly lowers cerebrospinal fluid Cu/Zn superoxide dismutase in amyotrophic lateral sclerosis patients with SOD1 mutations - Lange - 2017 - Annals of Neurology - Wiley Online Library
  4. C

    Advise on these symptoms thank you.

    Hi I am a 41 yr old male. I would like your advise on a set of symptoms that seem to at least put ALS as a possible diagnosis. I was diagnosed with ME./C.F.S in 1999 typical symptoms , at this time I did have muscle twitches for a few months shortly after onset, thought nothing of it. Late...
  5. A

    Muscle weakness, hyperreflexia, clonus and spasticity

    Good afternoon, I am one of a thousand people who visit the internet in search of answers that are not readily available from a neurologist. It is a frustrating process that drives us to chat rooms such as these seeking reassurance or answers and I am grateful for any input that is provided...
  6. W

    April 2017 Diagnosed

    Greetings, First I want to say “thank you” to all of you past and present that have posted on this forum. Although I’ve only been a member for a few months now, the information and encouragement you all have provided has helped. Was diagnosed April 15, 2017 with ALS. The below is the story...
  7. P

    Possible diagnosis

    Hello to all lovely people here. Firstly, I want to apologise in advance for my not so perfect english, it is not my first,nor my second language but I will try to be as clear as possible. For 2 months I have hestitated to post on here because I didn't want to intrude before someone actually...
  8. D

    Concerned - Seeking Group Wisdom While Awaiting Tests

    Good Evening All, I'm a 40 year old male who has followed these boards over the course of the past several weeks. I've had some interesting signs and symptoms emerge over the past few months that increasingly concern me. I was seen by my PCP early last week and after a cursory exam...
  9. E

    EMG Posting

    I am sorry for the delay in responding here. It has a been a hectic few weeks to say the least. Per my previous thread my wife has been diagnosed with "Probable ALS". Here are the EMG results: This was the initial one done by our local neurologist...
  10. L

    ALS symptoms

    2 weeks ago I developed a burning pain in right foot, that had spread up both legs by next day. Went to ED dept & had examination, including physical and could find nothing wrong. Tingling and electric shocks all over body for the 2 weeks leading up to now. Saw neurologist yesterday he said I...
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