neurology

  1. C

    Dysphagia/Respitory onset

    Hey guys, first of all, I'm very sorry for all your struggles with ALS and I do not wish anyone to have this terrible disease. About me, I am very scared of ALS for like 3 weeks now. It all started about 9 months ago. I've started having very strong coughing issues while eating/ even drinking...
  2. A

    Cannot wrap my head around this..

    Hello, first and foremost I'm not looking for a diagnosis. Maybe just some positivity! I am a 30 year old female who was living a very healthy, active, meaningful life. The kind of life where I have 2 beautiful children, a wonderful husband, am a former mail carrier (haven't been able to work...
  3. M

    21 year old, jerking moves and unusual fasciculations

    Hello everyone, I would like to thank you all for taking the time of reading and replying this. I am a med student from Colombia and my English is a little rusty, but I will do my best to communicate my messy thoughs. Last November I was on my campus when I started having little jerk moves...
  4. D

    What should i ask at my next visit?

    So I have a an appt. coming up on the 1st of March and I haven't gotten a true diagnoses yet. The team at OSU neurology believe its ALS, I am not convinced however because my symptoms are really atypical. My first symptoms were fasciculations 8 yrs ago in my calfs, constant, not painful with...
  5. Wilson2009

    Oklahoma City VAMC

    We are thinking about relocating to OKC this summer or fall. Does any forum member use the VAMC in OKC for their ALS clinic and services? If you do, what works and what doesn't work at the Center including the pharmacy and prosthetics? I know that both the OKC and Muskogee VAMCs have had...
  6. T

    Undetermined Symptoms for Over a Year

    Hello to All. Thank You for allowing me to express my concerns and worries. My post will be long, but feel I need to explain, as best I can. I am a 62-year-old female. To list some of my medical issues may be of help: Crohn's/Colitis which is currently in remission; Fibromyalgia; Raynard's...
  7. B

    32 Year Old Caucasian Male

    Hi All, This is my first time here. I will begin to tell you my story: On December 7th I came down with Influenza Type A. I had fever for 5 days and was prescribed Tamiflu on day 2. Right around that time I noticed a small pain in my left armpit - it felt like I pulled something. A few...
  8. V

    Any advice would be appreciated

    I am a 41 year old mom of two. I was diagnosed at age 27 with chronic myeloid leukemia and put on oral chemo which I continue to this day, everyday. I was in pretty good health until an episode of shingles three years ago. Afterwards it felt like I couldn’t deep breathe and had chest pain...
  9. BlsdMama

    Can we discuss reflexes?

    I have a working diagnosis of PLS. I’m aware of the statistics. So far two clean EMGs. Had a Neurology appointment at my research hospital, not Mayo. Mayo has dx’d PLS as well but because a glycine receptor antibody was found a trial of IVIG for Stiff Persons was ordered. I’m about seven...
  10. J

    Another "Bulbar ALS?" Thread

    Dear all, Thanks to a wonderfully useful website to those who are affected by this horrendous disease. I do wonder if anyone who has been diagnosed with ALS has had the following course of events which I'm currently going through. My current situation is as follows: I am a 29 year old male who...
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