Hey all, my background is that I am a 57 year old man with no history of neurological disease in my family other than my mother has Alzheimer's.
For the last year or two, I've been experiencing weakness in my upper back. I've always been healthy and fit and when I go to the gym these days I...
Hi guys, it's been 2.5 years since my mom got a diagnosis of probable ALS but cannot exclude MG, it's all very complicated. There was a partial response to medication for MG but there is still progress. Legs are strong and not affected.
Recently they did a SFEMG of the eyes, which showed...
I'll try to keep this as succinct as possible. I have been experiencing a variety of symptoms for several months. Symptoms have included; shortness of breath, fatigue, tripping/falling and most recently atrophy and weakness in my left leg. I have been evaluated by a pulmonologist...
Firstly, I'm keenly aware what some of you are going thorough, and I'm in awe that you all still give advice and aid to others. A truly good sign of humans overall. Thank you. And I wish nothing but goodness to you all.
I'm terrified I have ALS. My main symptoms are arm/leg weakness, some...
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Good Morning
Prayers and blessings to everyone affiliated with the website and forum and their families.
I am a 47 year male that was in great shape. I am 6ft 2in with weight fluctuated between 198 to 200 lbs. I worked out in some capacity everyday. My only previous health issues were acid...
I have now reached the stage where a wheel chair and van combination are needed. My neurologist just wrote the prescription for a wheel chair yesterday.
The ALS Society is going to loan me a Permobil F3 until I can get one of my own. Which type of wheel chair (and options) do you prefer?
What...
Hi All,
I have been reading a lot of the posts on this site for the past week and half and decided to finally post my own story.
I have been dealing with a lot of weird symptoms lately and decided to see a neurologist about it earlier this week who specializes in neuromuscular issues and has...
Hello everyone!
This ended up being a very long post so I I'm going to put a tldr at the end for those of you with limited energy.
This is my first post here and as a c9 carrier I will likely be lurking around for a while as it is the most comfort I have found so far. I want to say thank you...
Hi so to start with I’m male age 26
So a few months ago I got rapid heartbeat tachycardia (I know not often a symptom of MND),
They found no cardiac explanation, then started getting muscle twitches which I still get sometimes, again no obvious explanation. I noticed a panting in my throat...
I need your help even if I know it's a little out of place. I am French so sorry for mistakes.
Here is my story, I went to the Caribbean in July 2017 and I went back in August 2017. When I returned to Paris, I had a fever for no reason and she left in a week. I started having burns in the body...