neurologist

  1. V

    Drop foot query

    Dear All As some of you know, I lost my Dad to ALS four years ago in August 2014 and have struggled with both grief and health anxiety as a result. The health anxiety was terrible after my Dad passed, and it manifested itself in lots of "twitching" which was diagnosed as BFS from...
  2. S

    Could this be ALS please help

    Hi everyone, I’m here looking for some advice I’m hoping you can help me please. Here’s my story:- July 2016 - I had my baby boy by c-section, when they did my spinal I had a pain shoot down my right leg. Once he was here I had bad cramping and spasms in that leg this was continuous until about...
  3. S

    27 Year Old Male please read

    Hi y’all thank you for taking the time out to read this ... I have been living in fear for almost 3 years and I feel like I have to post here now .. My worries Started back 2.5 years ago when I had body wide twitching.. since then I started to notice how sometimes I slur a word or 2.. Since that...
  4. S

    Rough time, symptomatic and looking for some help.

    *after writing this, I see I am just regergitating all the symptoms I have been having and it lead to a long post. My intention is to let you know what ALL is going on when we all know there is probably just specific symptoms that I am focusing on for this forum.* Thanks for reading this long...
  5. B

    Scared about als

    Hey guys! I’m sure you get this all the time as i can tell by the threads that are posted . But here’s my worry .... My dad died this past January from als at 68. I’m worried sick that i have the symptoms and here’s why . In February it’ll be 2 years with muscle twitches . I went and say a...
  6. W

    Is it ALS?

    I’ve read the sticky note that said that this is not a progressive sensory disease. I felt immediate calm when I read that. But then personal experiences of people with ALS seem in line with what I am experiencing. For about 10 days I have experienced sudden muscle weakness. I am still a 5/5...
  7. Trippy

    Nuedexta as needed?

    Does anyone take this drug as needed, for example when planning to be around people, etc. or take it on a different schedule than manufacturer recommendations? I did a search but couldn’t find any information. I started a half dose (one pill) last week and within 24 hours noticed a definite...
  8. KarenNWendyn

    Question about ALS clinics outside the US and Canada

    Hi all, I’m writing a book on living with ALS. I’m curious if countries besides the US and Canada have a similar clinic set-up to what we have. We have “ALS clinics” which are held approximately every 3 months and are staffed by the attending neurologist and a team of therapists who all see...
  9. B

    concerned symptoms.....not sure what to think

    Hello, First off, I had been lurking here for about a year now and read the sticky note and that is why I haven’t posted anything yet. My thoughts and prayers are with you all who have this disease! My situation is a little different and would love for you some advice. Even if you told me to...
  10. N

    Progressive symptoms, very worried about ALS

    I have been having unusual symptoms since a couple of weeks after the birth of my third child in April although things seem to have really progressed since late July. ALS only really appeared on my radar about 3 weeks ago when I felt my speech was changing. I have copied my main concerns below...
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