Dear All
As some of you know, I lost my Dad to ALS four years ago in August 2014 and have struggled with both grief and health anxiety as a result.
The health anxiety was terrible after my Dad passed, and it manifested itself in lots of "twitching" which was diagnosed as BFS from...
Hi everyone, I’m here looking for some advice I’m hoping you can help me please. Here’s my story:-
July 2016 - I had my baby boy by c-section, when they did my spinal I had a pain shoot down my right leg. Once he was here I had bad cramping and spasms in that leg this was continuous until about...
advice
als
anxiety
back
breathing
breathing problems
burning
coughing
cramping
headaches
mri
neck pain
neurologist
night
pain
please help
problems
scared
sleep
spasms
story
swallowing
symptoms
tongue
work
Hi y’all thank you for taking the time out to read this ... I have been living in fear for almost 3 years and I feel like I have to post here now .. My worries Started back 2.5 years ago when I had body wide twitching.. since then I started to notice how sometimes I slur a word or 2.. Since that...
*after writing this, I see I am just regergitating all the symptoms I have been having and it lead to a long post. My intention is to let you know what ALL is going on when we all know there is probably just specific symptoms that I am focusing on for this forum.*
Thanks for reading this long...
Hey guys!
I’m sure you get this all the time as i can tell by the threads that are posted . But here’s my worry ....
My dad died this past January from als at 68. I’m worried sick that i have the symptoms and here’s why .
In February it’ll be 2 years with muscle twitches . I went and say a...
I’ve read the sticky note that said that this is not a progressive sensory disease. I felt immediate calm when I read that. But then personal experiences of people with ALS seem in line with what I am experiencing.
For about 10 days I have experienced sudden muscle weakness. I am still a 5/5...
Does anyone take this drug as needed, for example when planning to be around people, etc. or take it on a different schedule than manufacturer recommendations? I did a search but couldn’t find any information.
I started a half dose (one pill) last week and within 24 hours noticed a definite...
Hi all,
I’m writing a book on living with ALS. I’m curious if countries besides the US and Canada have a similar clinic set-up to what we have. We have “ALS clinics” which are held approximately every 3 months and are staffed by the attending neurologist and a team of therapists who all see...
Hello,
First off, I had been lurking here for about a year now and read the sticky note and that is why I haven’t posted anything yet. My thoughts and prayers are with you all who have this disease! My situation is a little different and would love for you some advice. Even if you told me to...
I have been having unusual symptoms since a couple of weeks after the birth of my third child in April although things seem to have really progressed since late July. ALS only really appeared on my radar about 3 weeks ago when I felt my speech was changing. I have copied my main concerns below...
als
arm
arm weakness
atrophy
children
dad
early
family
fingers
food
lift
mnd
mri
muscle
neurologist
pain
pressure
speech
stiffness
swallow
symptoms
twitches
twitching
weakness
wrists