need a little help

  1. Atsugi

    Speech Generating Device and Medicare

    A little while back someone posted a link to a form letter we could send to our congress critters complaining about the new Medicare rule that prevents PALS from activating their speech generating devices. I received response back from some senators, and the responses didn't even address the...
  2. shelleynshaggy

    Need a Little Help

    Hello everybody - I am hoping you can help us out by sending a quick email! For Christmas I got Jim tickets to see Jeff Dunham - the ventriloquist comic. He is one of Jim's favorites. He still laughs at him - something VERY rare! I would like to try to get Jeff to meet Jim at the show. Can...
    • shelleynshaggy
    • Thread
    • als christmas dementia diagnosed eyes father ftd life medical muscle need a little help ohio onset please help please help me young
    • Replies: 16
    • Forum: Off topic everything
  3. F

    muscle atrophy twitching

    hello i came down with what i was told was POTS Postural orthostatic tachycardia syndrome last Feb 2012 but i have other symptoms that pots dont realy cover. i get the twitching all over , but more twitching in both my calves more so on my left side, i seem to always have twitching...
    • fivebucks
    • Thread
    • als als? atrophy fasciculation foot muscle need a little help symptoms twitching
    • Replies: 3
    • Forum: Could this be ALS?
  4. M

    Rilutek

    When my Neuro asked me about taking rilutek I said no I don't like taking thing that make me feel bad. everything was new to me and i wasn't sure what to do he said that i have a little time to change my mind and he said that it would be better to be on it but it was my disission.Well I need a...
  5. J

    Need A Little Help/Input Trache

    We went to the ALS clinic today and was told that it was getting close to the time that my dad has to choose whether or not to go on the trache ventilation and feeding tube. He is very confused about the situation and does not know whether or not to go on the trache. In my opinion, I want my...
  6. E

    Need a little help please

    My wife was diagnosed with Anterior Horn Cell Disease just about 2 years ago now. They say she doesn't have ALS they just tell us it is Anterior Horn Cell Disease but that a exact diagnosis is almost impossible due to some other issues. My wife had scoliosis when she was 16 and has 2 bars in...
    • Ezgon
    • Thread
    • als atrophy back cell death diagnosed diagnosis eating emg fingers help! ideas mad mri muscles need a little help problems reading walker
    • Replies: 1
    • Forum: Could this be ALS?
  7. dldred

    Mom diagnosed yesterday

    I am new to this, so please bear with me. My mom was diagnosed with MND yesterday. I know nothing about it so I need a little help. She was first diagnosed with a stroke, it showed that on the MRI. Now the new doctor tells her she has MND. She has slurred speech for about a year and a half...
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