neck brace

  1. T

    When can I see things on this site?

    I joined last weekend - my daughter has had ALS for 14 1/2 years I saw a "neck brace" on this site and wanted to see the picture and was not able to access the pictures of it. I was wondeer just how long or what does it take for me to be an official member of this group. This is not the first...
  2. L

    Neck Brace--Home made collar

    For anyone who wants to construct a home made collar. Cervical collar (There should be 5 photos with these instructions) What you need for a medium to small collar: 24” by 4” of 1 ½ ” or 1 ¾ “ thick foam 4” by 4” piece of dense (firm) foam (Density of 'M70') About 6” of 2” wide webbing...
  3. L

    Neck brace

    I'm having a problem keeping my head up. I tried the basic $10 foam neck brace. But that didn't cut it. Does someone have a suggestion?
  4. E

    Fluctuating symptoms

    Hi, I am new here. So far I have no diagnosis but more and more (benign) things are being ruled out. I have had some weakness in l leg for 3 years, now also l arm, wrist and neck as well as swallowing. I saw one Neuro 3 years ago who thought I had MS but MRI's have been negative. Tensilon test...
  5. H

    Neck braces

    My dad's version of ALS started in his backand neck. He still had reasonable arm and leg strength, but his back just started to keel over, and he couldn't hold his head up. For 2 years doctors were telling him it was osteoporosis ( but his bone density test didn't show this). I don't know if...
  6. A

    Question regarding baclofen and quinine

    Hi - first post, but not first visit. Mom (who has ALS) was taking 10mg Baclofen a.m. and 20mg p.m. for leg spasms. Was ok for approx 6 months. Spasms came back at night- really severe - Mom's now taking 200mg Quinine at night. Reduced Baclofen to 10mg at night. It's been approx 5 days and...
  7. M

    neck braces

    Does anyone know of a neck brace that actually works and doesn't hurt or irritate the chin? My father's chin touches his neck, so that makes eating, conversation, etc. difficult. He doesn't seem to have bulbar symptoms, but he can't hold his head up. We tried a neck brace that the doctor...
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