neck brace

  1. minnesota

    Hospice, morphine and update

    Hospice started 2 months ago. Nice to have an RN to bounce ideas off. No help otherwise but feels comforting to have someone check in once a week. Jim still hasn't tried the massage they offer but based on your recommendations well give it a try! I would personally love it but they don't have...
    • minnesota
    • Thread
    • back brain breathing cals eyegaze finger fvc hospice ideas life love medicare meds memorial morphine neck brace pwc shortness of breath swallow tongue update work
    • Replies: 8
    • Forum: General discussion about ALS/MND
  2. dalvin

    Feeling down today

    Just got back from a visit to the ALS clinic. More bad news and it's getting to me a little. Neck muscles are so far gone that they've prescribed a neck brace to hold my head up. One of those strange looking contraptions with lots of metal involved. Then they did the respiratory fvc test down to...
  3. R

    head falling while asleep and can't pick it up to breathe

    I am a caregiver for my mother and have had a lot of recent issues with her head falling while she is asleep. She only wears her bipap during the day and doesn't want to wear an uncomfortable neck brace at night. When her head falls she now can't pick it up or make a noise loud enough to wake...
  4. Nikki J

    Neck brace

    Headmaster or other? For those of you who need it most of the time while up what has worked? Thanks all!
  5. A

    Heartache + Betrayal = Heartache x 2

    Its been a long time since been here. Guess you can say I have been preoccupied. Last January in 2013 my mother asked I help her - Mom has ALS. She said my father (who never cooked or cleaned before) could not help much, and he is in his 80's. So, with my husbands blessing, I traveled from...
    • AnaMaria
    • Thread
    • ache als back betrayal breathing caregiver dad depression divorce father neck brace nursing home stroke work
    • Replies: 8
    • Forum: Current caregivers
  6. G

    neck brace?

    My Mom has had ALS for 6 years and her neck muscles aren't able to support her head anymore. I'm looking for some device to help. A cervix collar didn't help. I think I need something to support her chin and help keep her head from drooping forward. I'm hoping someone might have some advice...
  7. Chase_Corin

    stuborn

    Well last month when we went to the ALS clinic the doctors thought that dad should have a power wheelchair that tilts him back so his head isn't listing forward. Well dad dosn't want it because he thinks he will have too hard a time breathing. Because he has a weak diapraham I understand where...
    • Chase_Corin
    • Thread
    • als back breathing christmas clinic dad feeding frustrated hours ideas money neck brace power power wheelchair rant van wheelchair
    • Replies: 7
    • Forum: Current caregivers
  8. E

    Neck atrophy

    My husband has Bulbar onset ALS. I'm noticing his whole neck and jaw area getting thinner, flabby skin under neck, too. He's also having Charlie horses in his neck. Will he lose the ability to hold up his head? Does it sound like this will be soon? He's otherwise very mobile. Has anyone...
  9. M

    Questions: swelling and neck brace

    Hi, my mom was diagnosed with Bulbar onset ALS about 1.5 years ago. I need some advice, I find navigating ALS issues so challenging. First, my mom has had a swollen leg on and off for the last few months, she is slightly mobile but falls without support, walks very slow, cannot get out of a...
    • MLOx
    • Thread
    • advice als angry arm bulbar bulbar onset chair clinic cold diagnosed fingers foot ideas neck brace onset power power chair problem questions support swelling
    • Replies: 8
    • Forum: General discussion about ALS/MND
  10. Poet Chistopher Robin

    Any ont bought or tried this neck brace yet

    Wondering if the good neck braces actually works and if its easy enough to get on any advice appreciated
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