Our beloved caregiver/friend/family member was diagnosed this week. She is a single mother to a 12-year old son in Brooklyn, NY, and while my mind is swimming with lists of to-dos, questions about medications and holistic treatments, clinical trial availability, and so much more, the most...
There appears to be considerable confusion among patients, doctors, caregivers, and regulators about the right of ALS patients to elect who will provide their care. The rule is actually very simple: an ALS patient should have the right to elect who will provide their care—licensed or...
I was diagnosed last Monday with ALS. It took a year of tests before my neurologist finally said he didn't have any more to run and sent me to the ALS clinic. I have 6 kids. 19,16,13,7,5, and 3. My mind races with all the things I want to and need to do. I'm 38 and had plans of being a crazy old...
Hi, im clare im 40 im due to have emg waiting for appointment my mri head scan was clear as was blood tests and lumbar xray they first tested me for ms i had a hospital stay due to a severe body tremor and shaking and neurological symptoms ( flashing lights) ive had coccyx pain over a year then...
Hi there, I joined the ALS support group in late June as my mother was diagnosed on May 30th and being an only child, I needed to take on the role of carer.
She first went to the doctors in June/July 2012 with tremors. They discovered that her thyroid med had been mistakenly overdosed by 5 times...
My beautiful mother Neina passed away on March 8/2009 of ALS. She was diagnosed in August of 2008. I have never posted in the forum before but I always visited and read the threads. I often would tell my mom about some of the stories that I have read. I took comfort in this site...to know that...
A year or so prior to my diagnosed - I had this insurance consultant friend calling me daily urging me to consider critical illness insurance - I just kept ignoring his calls...I'm only 37 and healthy as a horse - don't bother me with this garbage...
In January '05 I received an application to...