myasthenia gravis

  1. R

    Nothing to lose trying MG drug

    Following diagnosis last week with PBP (Neurologist 99% sure of his diagnosis) my husband will be going in to hospital on Thursday. They have decided to try him on the Myasthenia Gravis drug. The neurologist said "we have nothing to lose and some MND patients respond well to the drug" though...
  2. R

    Diagnosis

    Hello everyone I have posted a couple of times on this forum before but today had the news we didn't want. My husband Mark's neurologist says he is 99% sure now that Mark has MND - Progressive Bulbar Palsy. A slight abnormality on his EMG gave a glimmer of hope that its Myasthenia Gravis but...
  3. Sammantha

    Incidental Findings!?

    Hello, i have been go for awhile and do not recognize a lot of the names... I had the ct scan done to rule out pulmonary embolism but they found something... a thymoma..... the pulmonologist said that i need to be tested for Myasthenia Gravis but i had the bloodwork done for that over two...
    • Sammantha
    • Thread
    • back eyes hope muscles myasthenia gravis pulmonary function test respiratory vision
    • Replies: 8
    • Forum: Could this be ALS?
  4. S

    My "Final" Neuro Update: I hope!

    Hi Everyone, I haven't posted about anything going on with me in a while, but there's been a lot of progress since I've mentioned anything so I thought I'd give the latest, and as I said hopefully "final" update on my issues. Super quick update for newbees: Started with a twitch...
    • suzannj
    • Thread
    • advice als als research atrophy back brain choking could this be als cramping cramps emg fasciculation fatigue foot fund raiser hope life lyme mri muscles myasthenia gravis night pain research sleep tongue twitch update wrong
    • Replies: 17
    • Forum: Could this be ALS?
  5. DgtofTNfan

    Hi - new member with questions.

    My dad is 69yo and has had progressive coughing and swallowing problems for over a year. He has lost a great deal of weight - 20+ pounds. His symptoms have progressed to include slurred speech and poor breath support. His PCP kept treating him for a cold and thought that his history of severe...
    • DgtofTNfan
    • Thread
    • als back brain bulbar cold coughing dad diet emg fasciculations info mri myasthenia gravis neuromuscular disorder new member night oxygen problems questions reading research slurred speech speech support swallowing symptoms tongue treatment vision weakness worried
    • Replies: 3
    • Forum: Could this be ALS?
  6. P

    2nd single fiber EMG and tongue EMG normal - BUT

    Hi Everyone, More confused but par for the course, right? My husband had a second single-fiber EMG and a tongue EMG today - both were normal. BUT - the doctors found his tongue muscle is weak and one reflex is brisk. When they told him to stick out his tongue, it goes sideways a little...
    • perplexed
    • Thread
    • advice als arm atrophy confused emg meals muscle myasthenia gravis problems reflex saliva swallowing tongue weakness worried worried about als
    • Replies: 1
    • Forum: Could this be ALS?
  7. P

    2nd EMG slight change, saliva, swallowing and speech issues - prepare for ALS diagnosed?

    2nd EMG slight change, saliva, swallowing and speech issues - prepare for ALS diagnosed? I think the doctors are trying to prepare us for a DX of ALS though they say there are still two options, myasthenia gravis, and certain myopathies. My husband started having swallowing problems three...
    • perplexed
    • Thread
    • 2nd emg als atrophy cramps emg issues muscle muscle weakness myasthenia gravis problems progression saliva speech swallowing twitching weakness
    • Replies: 13
    • Forum: Could this be ALS?
  8. A

    best clinic for second opinion

    Hi. I've posted once before and received some wonderful answers so I am back again:) My Dad was diagnoseded with ALS on Dec. 2, 2008 after 3 months of difficulty speaking and 2 months of testing. The only noticeable symptom he has is the speech which varies from day to day (and actually...
    • aurore
    • Thread
    • als back clinic clinics dad denial diagnosis emg insurance lyme lyme disease myasthenia gravis problem reading second opinion speech symptom testing tests twitching wrong
    • Replies: 0
    • Forum: General discussion about ALS/MND
  9. P

    difficulty swallowing with no muscle weakness - how tell als from myasthenia (yet)

    Hi there - I've posted under other headings, but am honing my questions as time goes on. Has anyone presented with swallowing difficulty and mucous/saliva in the mouth but no muscle issues? Can als present like this (bearing in mind any condition can present atypically) or is it more...
    • perplexed
    • Thread
    • als choke muscle muscle weakness myasthenia gravis questions saliva scared swallowing tests weakness
    • Replies: 2
    • Forum: Could this be ALS?
  10. A

    Familial ALS?

    Hi. This is my first posting as I have been trying hard to ignore my now very obvious symptoms. Since June I have had twitches/fasciculations which have progressed from one foot to all over my body now. I also have cramps, severe fatigue in my leg muscles and several times a day my toes go...
    • abitofaprincess
    • Thread
    • advice als als symptoms als? back breathing cramps dementia diagnosis early early symptoms familial familial als fasciculations fatigue foot ftd helpful ignore life muscles myasthenia gravis neurologist pneumonia swallowing symptoms tests twitches twitching weakness weight loss
    • Replies: 19
    • Forum: Could this be ALS?
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