my hero!

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    My love...my John...

    I lost the love of my life, my Hubby, John, on June 5, 2017. ALS is a horrible disease...I pray for a cure one day soon....for all diseases. ALS did not beat John....John beat ALS....with his smile, his determination, his strive to live each and every day with joy, and not sorrow! Even his...
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    140311, the day..

    140311 my dear mother passed away. She had struggled with ALS three years, 8 months of them properly diagnosed. She fought for so long. The last 10 months in her life she layed in a hospital-bed unable to speak, move, eat or breath on her own. It was a living hell, all the questions, all the...
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    Free at last

    My life partner of over 13 years, Michel, passed away on Friday, April 5, 2013. His first symptoms showed two years ago. His case was one of the most aggressive his neurologist had seen. But through it all, he was brave and strong and proud. We spent the last 6 months enjoying life, the summer...
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    My Dad...such a strong Man!

    Hi everyone! I do not post much....but I read, read, read. I learn so much from all of you. My dad was diagnosed a year ago. He has declined rapidly. He went into the hospital a week ago this last Monday because his heart went into afib...this was the 4th time...by last Wednesday, he was...
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    Dad still dances

    Hi everyone, I have not posted in awhile, but I just have to share how proud I am of my dad. As you may or may not know, my dad is 84 and was diagnosed in Feb 2009 with ALS. Prior to his diagnosed, he was a very active man with square dancing being one of his many activites and one that he...
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    Update update on my hero!

    Well everyone it turns out that my dad does have ALS and its been very very hard on us for the past week. He was diagnosied with the slow progression A typical ALS. They also gave him Relutic(sp) to help slow the symptoms down. They said he had about 10 years. But everyone who knows my dad, and...
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